I’ve been lurking on this forum for a while, but finally took the courage to sign up!
I was wondering if anyone had any advice regarding Datscan results? I’m 29 and have been struggling with my health since 2014. I went from being an energetic, sprightly 25 year old, to now struggling with daily tasks such as writing, walking, speaking and swallowing. Over the past 4 years I’ve been told it could be anything from a trapped nerve, to MS, to stress. However, last autumn I developed a tremor in my right hand. My GP said it was almost certainly essential tremor but referred me to a neurologist for a second opinion. He sent me for an MRI, ECM, Bloods and a DatScan last month and I have now received all the results. The bloods and MRI have both come back clear, but the DatScan says I have patchy uptake in my left putamen. I was sent a copy of the results by my GP and the radiologist has written under the conclusion "this is in keeping with mild parkinson’s or parkinson’s plus syndrome.’ I was shocked, as Parkinson’s was never mentioned to me at any point, and I certainly wasn’t expecting to find out via an e-mail while out and about one Monday afternoon. I’ve now been desperately trying to speak to the neurologist to get the diagnosis confirmed, but he is illusive to say the least.
I just wondered if anyone has received a similar finding and then gone on to be diagnosed with PD? I feel like I’m stuck in limbo, as until the diagnosis is confirmed I feel like I can’t speak to my friends, family or work about the potential outcome, in case the Neurologist decides the dopamine drop isn’t sufficient enough to class as PD? It’s been 2 weeks since I got the news and I am still battling with the hospital to get any more information on the situation. Am I right to assume a Parkinson’s diagnosis is coming my way?