Hello. I had my DBS done at Addenbrookes nearly 3 years ago. I have to admit that it has not been particularly successful. It worked initially it worked on the left side but the right side has now has recently started to cause severe problems. Both my surgeon and my consultant are some what perplexed by my condition. I was offered for options, first option was to stay as I am, option two was to go back in and tweak what’s already there option three was to put a whole second system in thalamus area. The fourth option which they suggested is to refer me to UCHL for a second opinion. At last my husband and I feel that life might be moving in the right direction.
Since I got back from Addenbrookes on Thursday it has not been quite violent and for awhile I thought that some small miracle had taken place, how very silly of me to have such a thought. I cannot now type, write, chop veg, carry cups etc, etc!Life at the moment is pretty grim.
My faith in the national health system has not been painted and I feel that with patience And time life will become better. I am perfectly fine to the fact that I have Parkinsons and this is the way my life will develop. Many people I know suffer a great deal worse than me and for this I am very thankful.
Tweaking medication and settings can help but I reached the point now where I don’t bother anymore. The fewer drugs I take the worse my symptoms are the more I play with settings worse my dyskinesia. It becomes a case of damned if you do damned if you don’t!
I have a friend who recently had his operation unfortunately because of infection she had to have it removed. I believe that she may be offered a second chance, God bless her! I will update you when I speak to her. Bless you hopefully life will improve for you.