I was diagnosed as having PD when I was 25, and am now 30. I went in my DBS surgery in December, which all went without a hitch.
Had the first programming session 6 weeks later, where I was set to 1 volt both sides, with the aim to increase the voltage to ~3.5v both sides. Then I gradually increase to 2v, incrementing the voltage by 0.1 every 3 days.
I have just had another programming session, 7 week after the last one. The plan is to increase the voltage by 0.2, every 3 days, up to 3.5v.
My question for those that have had DBS is: How long post-surgery was it before you felt any benefit?
I have been more exhausted, more dyskinetic, stiffer and generally feel worse all round. Is this "normal"?