I am writing this post for my mom who has been on DBS (Medtronic Kinetra system) for about 15 years now, who lives in India. Recently her battery typically lasts for 5 years depleted . So, with no other option available, we had to get her admitted for a battery replacement. We had to switch doctors because of the proximity to our old doctor who is located in Hyderabad. Now, the new doctor suggested we go with the Boston Scientific Vercise pulse generator with rechargeable option. Since the doctors are limited in India specialized in Parkinsons, we had no choice but to go with what he suggested.It has been 5 days since her surgery she is in a state of semi conscious state. The doctor has no clue why. He keeps setting the current control up and down but nothing else. There is no consultant also that gives us any education or support on this new system. Is this acceptable from a medical device manufacturer to leave patients with no education or information? Any one know what options do we have to get some support from BS or anyone with similar experience give some guidance?
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Hi Kaus_Sing,
Welcome to the forum, thank you for sharing this.
We’re sorry to hear you and your mum have been going through this. We always recommend raising any issues like this with your medical professionals, we’d also recommend reaching out to local Parkinson’s charities in your area for their advice. We are based in the UK but if we are able to help you can contact us here: About our helpline | Parkinson's UK
We hope this helps.
All the best,
The Parkinson’s UK Moderation Team
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