DBS - The Rollercoaster
I was DXD at 45 after 7 years struggling with meds.
I had my first DBS in August 2013 and had it redone in March 2014 as the probes were too close to Optic nerve.
It has been a nightmare and only now after changing Neurologists have I found any sustainable positive results . I am on more meds than when I started and I dislike the fact that my care is now dependent on an expensive specialist.
The stress, and anxiety of the whole experience I believe has made me worse so I am don't feel at all positive about the experience.
I did see the best in the Southern Hemisphere (the go to guru) so had a very experienced team but I found little data giving info on effectiveness of DBS.
I found the article below very informative.
A history of deep brain stimulation: Technological innovation and the role of clinical assessment tools
Social Studies of Science 43(5) 707–728 © The Author(s) 2013 Reprints and permissions: sagepub.co.uk/journalsPermissions.nav DOI: 10.1177/0306312713483678 sss.sagepub.com
￼￼￼￼￼Department of Sociology and Communications, Brunel University London, London, UK