Deep sleep


#1

Hello   Last night or rather this morning I took my slow release Madopar 1.25mg  at 1.00 am and went to bed, as I was very tired I fell asleep in a instant.  and did not wake until 7.30 am for the traditional bathroom  visit and also the fitting of Duodopa  this was done and by then I had dozed off,  FATAL whenever I do that I go into deeeeeeeeeeeeep sleep and cannot wake, I almost made it three or four times and failed it was a hideous dream that forced me to return to a conscious state but this was 10.20am I never sleep that long the latest being 8.00am  , is this the start of a new phase of PD  if it is I am terrified as it  makes me feel like  I am dying and often I feel I am in a deep long tunnel with a pinprick of light at the end, and I struggle towards it, I am finding it more and more difficult to reach the light, does anyone else have this alarming situation occur , its not nice.

                            Kindest Regards           Fed

  


#2

so you went to sleep with the duodopa on?

people who have duodopa 24hrs only take 2/3rds dose during the night. if you go to sleep with it on you may be in effect overdosing. did anyone say why it is off at night? i know from experience that od of levadopa causes the sort of thing you were describing. so i would suggest once you are plugged in you stay upright and awake. 

take care.


#3

HELLO   Turnip,I take the Ddpa, off before I go to bed, I also take 1    1.25mg slow release capsule , this does help a little with mobility in the early hours but its not until  the pump is refitted  about 7.30 that normal service is returned..but if I allow myself to drift back into sleep thats when its hard to wake up.

                                                 Best wishes   Fed


#4

just 1 slo release for the whole night seems a bit low to me compared with what i take.


#5

What dosage do you take, and is it working, its 2.00am here and I am just going into battle with the demons I am taking my teddy though he stopped being effective 60yrs  ago

                       Good night my friend  or gute Nacht  meine Frieunde as a Deutzlander would say

                I am going to try and learn German                  Fed


#6

I take a normal madopar at 9 and 2 slow release at 10. (sometimes 3). i sleep from 10 till 4 and 5 till 7. only a proportion of slow release get through compared to ordinary and they take several hours to kick in.. my personal opinion is that a lot of people are under medicated at night but in fact it is just as important as the day. thats just my opinion.


#7

HI TURNIP

just been to gps today to get my precription for sinemet cr slow release for night time,  really stiff at night ,hard to move round & aches. will let you know how i get on ! wise one master jedi


#8

Hi Turnip

             I am interested in your reply re slow release madopar,I was diagnosed may 2012 and started right away on madopar,this may 2013 a slow release was prescribed at night,and was started on selegeline  at thisvtime,I take 125 madopar at approx 7,12,and 5 then the slow release around 10ish, this helped my sleeping but now its not so good, i would like to keep the med s on a low dose as long as i can,do u Think an extra madopar around 9 to 10ish would be better than an extra slow release.I dont  go back 2 the neur for 9 months but will likely contact the pd nurse shortly,thanks for any advise on this 

 1big grin

 

 

 

rr

 

 

 

 

 

 

 


#9

hi Anne

i would discuss it with your pd nurse. the nurse can pass on your questions to neuro, but as its a game f chinese whispers make sure your message is clear and simple!  


#10

dear gushopper (do you remember Kung Fu?)

food for the day is harvested by moonlight

the sleeper must turn like goose on a spit, or will be half-cooked for the next day's feast

 

Master Poo


#11

Hi master poo .  i remember hi karate soap on a rope,all use both sides,ie so one side does not where out before the other first. master! turnip


#12

you learn well Gushopper

 


#13

Thank you wise one ! have a good 1st day of 2014 you & family


#14

you too. now am off to sleepybyes


#15

 

       Whats sleepybyes, am I to understand its a system used in cricket , our once brilliant English players shamed by a wihitewash, its all too easy to blame the heat and the sledging anything but the lack of team spirit I  firmly believe there is a class distinction situation in our National team where the very well off well educated players look down on the lower class You  can sense it , they have ceased to gell as  a team and will surely go  backwards if some kicking of A???s  is not meted out, in short they have dozed off in the Aussie sun , and yes they have gone sleepybyes so in the unlikely event that one of the abysmal excuse for a cricket team will  read this,,,,,,,,,,FE????g WAKE  UP.

                             Fedevilsad face