Thanks to everyone who responded.
I saw a neurologist on Thursday. The NHS waiting list was to see a neurologist (Gareth) was 6 months so I went private. It wasn’t cheap but I needed a diagnosis.
Gareth seemed very nice and he advised me that my condition could be controlled. He said he would send a letter to my GP and that I should phone my GP on Monday to check if there was a prescription ready.
I phoned my GP Monday morning and they had not heard from Gareth. I phoned Gareth’s secretary at 11:45 but could only leave a message on her answering machine as she had the day off.
I phoned my GP Monday afternoon and they had not heard from Gareth.
I phoned Gareth’s secretary this morning (Tuesday) and she said “There’s no rush for you to start treatment. When Gareth has written the letter I will type it out and phone you and perhaps I could drop a copy off.”