Thanks so much for sharing your experiences with me, it is so interesting to learn what other people have experienced and indeed my main feeling is that my hubby and I came away from that first appointment and diagnoses with the Neurologist having hardy asked any questions or the right questions!
However, I am seeing him again in a month or so and will go armed with whole list of questions. Personally I prefer to know the cold hard facts, the no-frills version, but I am also so grateful for just how positive you and everyone else has been, it would be so easy to get depressed about having this relentless disease, and I now also fully appreciate that all of us with PD travel on our own individual and challenging paths.
I am particularly interested in the drugs issues you have mentioned and think that you and others who are choosing not to take the drugs immediately after diagnoses make a very interesting point. I will definitely be discussing this with my Neurologist. But as you mention, we all manifest our symptoms at different times and in slightly different ways, I will be interested to hear his views on this; unfotunately I have found I find that I am really struggling to type fast and accurately now, I have slowed right down and make tons of typos as my fingers and hands simply just can't coordinate properly anymore. I have noticed this gradually happening over the past year or so and was thinking it was RSI, so have had to develop my own way of coping at work (unfortunately fast, accurate IT work is vital to my job), so my ability to do my job is another issue I am going to have to face up to sooner or later.
I completely agree about needing time to fully absorb the diagnoses so you can tell people without breaking down - I am up and down emotionally just now, one minute I think I am OK, but then I'll read something or think about my children and the eyes start to well up. I don't want to scare them so my main message will be a very positive one! As life will carry on, and no matter how hard the challenge I will continue to enjoy every moment.
Thanks for your kind words Su and offer to message you. As I learn to understand and accept what is and has been happening to me, it is comforting to know there are others out there who understand completely from their own experiences - although of course I wish that non of us, or anyone else in the future, ever had to live with PD - perhaps one-day that will become a reality.
Take care - Twist