i too delayed taking medication for 18 months when dx at the age of 49. When I practically crawled into my neuro he prescribed sinemet plus. He took time to explain the medication and how to teeter up to a maximum dose of 4 x 100/25 daily along with 1azilect. I could feel the benefit straight away, it was amazing. I know the benefits won't last for ever, but for now it's fine. My Parkinson's specialist nurse is more 'keen' for me to go down the DA route, on my last appt she told me I'd have to go on it eventually, so might as well start now, it's a patch so slowly released, no or very few side effects......and anyway, it's single men that get most side effects......? I declined.
my post was not intended to cause offence, and of course you don't want to be in a wheelchair BB nobody wants that, and yes, gimme the drugs is you're school of thought and if it's working well for you then that's great. I am concerned that within two years you are unable to walk without introducing an apo-pen. Is you're awful dystonia related to you're medication or Parkinson's progression, it sounds really frightening. I get a slight dystonia in my fingers and toes....parky side, which can be painful, this normally happens when my body needs levodopa....normally 1st thing in the morning.
we are all different but suffering the same complex disease.
with best wishes