You have taken the first step by joining this forum. I have found it immensely helpful and supportive. I fully concur with the posts above. I'd like to add to them.
When you get your nurse I hope you find what I found.....an empathetic and very knowledgeable lady. I have phoned her twice and both times my mind was put at rest. I hope you find the same.
Secondly you must ask for help if you are under pressure. I found this a big hurdle to get over. I have now accepted I can't do everything for my self. What I can do, is as much as possible and ask for help with the rest. In this bracket come carers, social workers and medical personnel. If you don't ask you don't get.
Goldengirl hit the nail right on the head with the notepad idea. I keep a diary of all problems encountered. If I don't do this I forget. I write down bullet points before phoning, if phoning up for help.
Something I learned from a very clever psychologist I worked with at one time, which is very important......Time Management. Minds go into overdrive when you try to do too much too quickly. Plan and organise and build in time for YOU. If you burn out you will be no use to anyone. Link below might be helpful.
Talk to your brother and sister. Arrange a family meeting to see if you can share part of your load.
Shopping.....what about home delivery?
Mobility......electric scooter / wheel chair? To help get your Dad around.
Finally I was very poor at putting across my point of view medically. You should find the experts will have come across so many similarities they will understand you.
One example I had was this......
I wake up in the middle of the night and I feel jittery, I get a lost feeling and have to get up and wander about till it passes. I thought this wouldn't make any sense to a consultant or specialist nurse. Far from it they told me they knew exactly what I was talking about.
You will find on here people in the same boat. They have experienced similar problems. None tell you what to do they simply offer helpful suggestions.
One thing stands out for me....I am not alone.
With best regards for a suitable outcome, Orpheus.