Any advice please.
I was diagnosed with Parkinsons in 2010 aged 44........(having lived with the symptoms 4/5 yrs prior to this)
In 2012 after trying to carry on working i was medically from work.
Has i gradually got worse, Being from a proud working family i was unaware what could claim benefits wise and how the system worked.
Eventually i took the step and claimed fro DLA and ESA.
DLA. I was awarded higher rate living allowance and lower Mobility this was awarded indefinitely.
ESA. After the first 12 months, I was awarded (after an appeal) was awarded this indefinitely.
Because i was awarded both indefinitely i still await to be asked to re-apply to PIP.
But this last six months my Mobility has rapidly declined and having just being diagnosed with Dystonia by my specialist.
This being a change of circumstance, even though i would shortly have to apply for PIP. I think i should phone up now and mention this change of circumstance,
Has anybody been in similar circumstance or any advice they can give. Dystonia is an illness in its own right but together with Parkinsons you can imagine the Fun i have been having.
So apart from the Stelevo/Rasagaline daytime and Mirtazapine/Simenet/Clonazapan nighttime. My specialist has started me on Madopar and i am back to see him in a couple of weeks.
Would be grateful to here from anybody.