yes i will thanks for the advice gus , side effects are causing me problems at minute so much nausea even with domperidone , not a happy bunny at the minute 
ok hope you get better
Thank you Gus 
SINCE MY DIAGNOSIS WITH YOUNG ONSET PD BACK IN NOVEMBER MY GP TOLD ME IT WOULD BE WORTH PUTTING IN A CLAIM FOR THE NEW PERSONAL INDEPENDENCE PAYMENT I THINK IT USED TO BE DLA, I HAVE THE FORMS BUT HOW DISABLED WITH PD DO YOU HAVE TO BE TO GET IT? I AM HAVING SOME MOBILITY PROBLEMS AND OF COURSE THE SIDE EFFECTS OF THE MEDS DONT HELP BUT YOU HERE OF PEOPLE EVEN IN WHEELCHAIRS BEING TOLD THEY HAVE TO WORK SO I FEEL A BIT OF A FRAUD APPLYING AND WHAT HAPPENS IF I APPLY NOW AND THEN DETERIORATE DO YOU HAVE TO APPLY ALL OVER AGAIN, HAS ANYONE HAD AN EASY TIME GETTING IT OR IS IT A NIGHTMARE PROCESS AS APPLYING FOR BENEFITS SEEMS TO BE GRATEFUL FOR ANY ADVICE.
Hi Candy
i cant speak for everyone but this is my experience of applying for PIP
I started my claim on 4/9/2013 by making the initial phone call was told i would get a part 2 form , how your condition affects you within 10 days , the form never turned up and after 3 phone calls to DWP i was told i could not be identified on the system i would have to be sent a form to take my identity to a local jobcentre plus office, that form never arrived either , 8 weeks and god knows how many phone calls to DWP i finally got fed up got in touch with someone on the PUK helpline who put me in touch with a lady who had a contact within DWP who helped me sort things she suggested i contact my local MP which i did , between my mp and the dwp contact through puk i was finally sent part 2 form in early November , having now returned all the relevant paper work ,i am now awaiting a appointment for Capita to come visit me at home , i have been waiting since the end of November apparently there are no available appointments in my area at the moment Capita offered me a appointment at a clinic in Coventry on public transport Coventry would be nearly a two hour journey for me my response to the offer was ' if i could travel that far on public transport then i should not be claimimg pip ' the whole process so far has gone on for nearly 6 months with no chance of it being sorted any time soon .......not a very good experience at all
The best thing to do is get your parkinsons support worker to get the form,and also help you fill them in. You have to put your worse day, ie having trouble dressing,washing,getting out of bed,not being able to go up stairs without any help ! cooking ,walking put your worse day. worse day in pain if you suffer this aswell! Thats what you got to do,list all medication,picture of meds,all consultants notes ,letter from gps,everthing more the better ! My pd information support worker is great lorraine bilton south west area .GREAT. Never had no problems at all, you should get low rate at least for the start of your pd.Then if and when you pd gets worse your be in the system making it easier to claim,Dear shelly sent all my paperwork in to atos and was told all ok did not need interview with them,but i have had pd for 8yrs also had dbs surgery,& lower lumber back problems .you should have no problem as you are genuine person. that was for esa support group.dla were even better ! i know its hard to believe
DLA was the best system i have had to claim under the new PIP system , there are two rates for daily living and two rates for mobility , standard and enhanced , its a points system you have to score so many points i think its 8 for daily living for standard 12 for enhanced and i think its the same for the mobility its Capita who do the assessments in my area .
you can download the point system they use of internet to give you an ideal of point system.
How do they work out the points they award you, Do you have to be seen by an independent doctor, I have got a copy of the letter that was sent to my Gp confirming the diagnosis, I was going to send that with my form I thought that would be enough proof, This points thing sound complicated and probably isn`t a fair way of doing it.
I sent a copy of the letter my neuro sent to gp confirming diagnosis to candy in a lot of cases you have to attend a face to face assessment depending on where you live it is either Atos or Capita that do the assessment they base the award on how your condition affects you not your actual condition
there is a idea of the points system on the link
Ok Thank you shelly65 I have also sent a copy of the letter from my neuro, It is certainly a minefield claiming for things isn`t it? So if you have to see someone for an assessment I guess they get you to do tasks and see how well you can do them? Atos has a very bad reputation dosent it? I have read instances when they declared really disabled people fit for work, They are more interested in getting the claim figures down than actually taking into account that persons needs. So proof from the specialist really isn`t enough and if you have to be assessed you probably have no hope, oh well I`ll send it in and see what happens but not holding out much hope, Has anyone had a good experience?
yes mine was ok! posted 12th jan
Posted mine today, Now will just have to wait and see what happens.
sorry never posted through letter box,posted on forum 12th
Hi Candy
i am not sure but i dont think they make you do things , from what i understand it is more questions about how your condition affects you ,and your mobility issues ,in my area the Midlands it is Capita that do the assessments . i hope you have a better experience than i have had mine has been going on for 6 months and still waiting for a visit from Capita 
Poor you I hope you get it sorted soon!
Thanks Candy , good luck with your claim
Thanks shelly65 and good luck to you too.
Hi all,
Has anyone had their DLA claims sorted yet? Still no news on mine but it is still very early days
I am still waiting for a home visit from Capita , on calling them i was told they do not have any home visit health professionals in my area but there in the process of hiring some 
maybe they should send Atos out after all they can cure me
Mine has been going for 6 months Candy and still waiting