Hi, I am at my wits end, in pain, confused, lost and scared, I need help, but don’t know where to turn.
I have been watching this forum for a while, since being diagnosed with Parkinson’s just over 3 years ago, but never posted before,
I am on Repinerol (Repenix XL) 12mg, which I split and take the 8mg tablet in the morning and the 4mg in the evening. but t juts does not appear to be working at the moment.
This weekend I lost it, totally, I was supposed to be on a business trip to Australia, but had to turn back in Dubai, I could not finish the trip. I was shaking uncontrollably, 1/2 my face had gone numb, i was in pain, I was drowning in my own sweat and stank to high-heaven (not good in an enclosed metal tube @ 40,000 feet). I just wanted to find a hole, curl up and die
I got back to the UK yesterday. My wife & boss keep suggesting the local walk in centre. whilst I have been there in the past (for me, family and friends) for various things, and think they do a great job, I am not sure they can help me now. I need specialist, PD related help.
I (well my wife) has rang my local PD clinic at the hospital and left a VM, but they will not get it till Mon. I have not seen my Neurologist in almost 18 months to discuss worsening symptoms. they rearranged the booked appointment in June to July, then they cancelled that. I have rang to ask when it will be rescheduled and just been told to wait until it is. So don’t expect anything quick to happen there.
was going to ring the Parkinson’s UK help line today, hence being on this site. But see they are not open today
Who can I go to to help, i cannot go on like this. i know a message board is not the right place, but i have no-one i can talk to. My wife, family and friends do not understand what PD does to you, and most simply act as if it is not there:: never ask me about it, or talk about it.