Resurrected for Christopher23's reference.
.
Latest OCD list, with new behaviours added.
Gambling
Excessive lifestyle
Shopping
Hyper spending
Reckless generosity
Hypersexuality
Extramarital affairs
Suspicions of partner’s infidelity
Cross dressing
Pornography (inc child pornography)
Prostitution use
Fetishism (e.g. bondage, masochism, sadism, paraphilia)
Sexual reorientation
Obsessive masturbation
Frotteurism
Exhibitionism
"Flashing"
"Peeping Tomming"
Paedophilia
Zoophilia
Visual hallucinations
Obsessive risk-taking
Punding
Delusions (e.g. grandeur, paranoia)
Threats of violence
Violence
GBH/ABH/Disfigurement
Murder
Self harm
Suicides & attempts
Massive creativity change
Singing
Eating
Most affected patients suffer from one compulsion initially, and then more come along. Compulsions usually get worse when doses are increased. Most sufferers become secretive, devious and aggressive, and deny everything - usually blaming the accuser and claiming there ISN'T a problem.
24% (1 in 4) of PD patients prescribed DAs suffer from OCDs to some degree. This is the latest confirmed research figure, published in February 2011.
Ray.
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Latest OCD list, with new behaviours added.
Gambling
Excessive lifestyle
Shopping
Hyper spending
Reckless generosity
Hypersexuality
Extramarital affairs
Suspicions of partner’s infidelity
Cross dressing
Pornography (inc child pornography)
Prostitution use
Fetishism (e.g. bondage, masochism, sadism, paraphilia)
Sexual reorientation
Obsessive masturbation
Frotteurism
Exhibitionism
"Flashing"
"Peeping Tomming"
Paedophilia
Zoophilia
Visual hallucinations
Obsessive risk-taking
Punding
Delusions (e.g. grandeur, paranoia)
Threats of violence
Violence
GBH/ABH/Disfigurement
Murder
Self harm
Suicides & attempts
Massive creativity change
Singing
Eating
Most affected patients suffer from one compulsion initially, and then more come along. Compulsions usually get worse when doses are increased. Most sufferers become secretive, devious and aggressive, and deny everything - usually blaming the accuser and claiming there ISN'T a problem.
24% (1 in 4) of PD patients prescribed DAs suffer from OCDs to some degree. This is the latest confirmed research figure, published in February 2011.
Ray.
.
Welcome back Ray
Thank you Spammy, nice to have been missed.
Penfold, read ALL of this thread, and others like it.
Ray.
Ray.
Hi Ray,
Reading your latest OCD list would have people believing that things are straightforward,Black and White.Many on this forum probably exhibit some of the areas you have highlighted.I could list mine,but i think that there are OCD traits in most people who are not even on medication.
The crucial thing is though,what impact do the compulsions have on that persons life,family,health,finances,sanity.I think that a balance has to be struck.If certain things are heightened,they may not necessarily be detrimental.As you know,i like a flutter on the horses.Twenty seven years i have visited the bookies.It is no coincidence that i have had some big wins recently.Studying the form and taking time to concentrate have culminated in a win last week of £1,553.95.The bet cost me £1.20.So the medication is giving me a big plus side of increased interest,financially we are not in debt,the house is paid for.Finding that you know what you are doing and adjusting things around those findings,aware of the hurt that is possibly caused by your actions,is completely different to cross dressing and not knowing what you are doing.
With me,i am aware of things increased,at certain times when ones guard is down,thats were things go wrong.I spend more time studying form on the computer,on the computer full stop,more time in the bookies.Result,the time spent is an issue,but when it is time spent profitably,then it has an element of control.Spending,everyone has those little moments of spending madness,i do,have,but again,there are limits.
I won,t go into every area,but always having the higher sex drive,means nothing that unusual to my Wife,though the waking her up in the night doesen,t go down well
.Things can be worked around though,and i suppose the awareness dished out by yourself an others is crucial.I realise that sometimes my behaviour is a little extreme,but i am aware and have a large element of control.It is obvious that i have side effects from the DA,s ,but the blame cannot be solely apportioned to DA,s.I see someone each week regarding the psychological side.This was in motion before DA,s even touched my lips.Life,events,childhood,other illness,you name it have left me with issues which run parallel with my pd.To what extent the DA,s exacerbate problems that already existed i don,t know.
I won,t sit here and say i am not effected,but what i can say is i do have control if i choose to use it.Having experienced doing things knowingly,knowing i shoulden,t,then facing the music later is a weird thing.However when its something i enjoy,and nobody is directly hurt,then its my life.I have been diagnosed with depression,but because of Azilect,cannot take.This i think,has a huge bearing on my outlook and behaviour.
Poetry and things i write are often down and negative,everything rolled into one is gathered together i feel and blamed on the DA,s.I write this now,because in 2 days time i visit the pd nurse,3 months after last appointment so as to be closely monitored.There,i will give my view,my Wife shall give hers.
Personally,i think that the Mirapexin has more positives than negatives,its just keeping the balance right,a tight rope of a situation.If my pole is taken away however,i will not be happy.Will let you know.
From the self control,totally aware,antagonist
Titan
Reading your latest OCD list would have people believing that things are straightforward,Black and White.Many on this forum probably exhibit some of the areas you have highlighted.I could list mine,but i think that there are OCD traits in most people who are not even on medication.
The crucial thing is though,what impact do the compulsions have on that persons life,family,health,finances,sanity.I think that a balance has to be struck.If certain things are heightened,they may not necessarily be detrimental.As you know,i like a flutter on the horses.Twenty seven years i have visited the bookies.It is no coincidence that i have had some big wins recently.Studying the form and taking time to concentrate have culminated in a win last week of £1,553.95.The bet cost me £1.20.So the medication is giving me a big plus side of increased interest,financially we are not in debt,the house is paid for.Finding that you know what you are doing and adjusting things around those findings,aware of the hurt that is possibly caused by your actions,is completely different to cross dressing and not knowing what you are doing.
With me,i am aware of things increased,at certain times when ones guard is down,thats were things go wrong.I spend more time studying form on the computer,on the computer full stop,more time in the bookies.Result,the time spent is an issue,but when it is time spent profitably,then it has an element of control.Spending,everyone has those little moments of spending madness,i do,have,but again,there are limits.
I won,t go into every area,but always having the higher sex drive,means nothing that unusual to my Wife,though the waking her up in the night doesen,t go down well
.Things can be worked around though,and i suppose the awareness dished out by yourself an others is crucial.I realise that sometimes my behaviour is a little extreme,but i am aware and have a large element of control.It is obvious that i have side effects from the DA,s ,but the blame cannot be solely apportioned to DA,s.I see someone each week regarding the psychological side.This was in motion before DA,s even touched my lips.Life,events,childhood,other illness,you name it have left me with issues which run parallel with my pd.To what extent the DA,s exacerbate problems that already existed i don,t know.I won,t sit here and say i am not effected,but what i can say is i do have control if i choose to use it.Having experienced doing things knowingly,knowing i shoulden,t,then facing the music later is a weird thing.However when its something i enjoy,and nobody is directly hurt,then its my life.I have been diagnosed with depression,but because of Azilect,cannot take.This i think,has a huge bearing on my outlook and behaviour.
Poetry and things i write are often down and negative,everything rolled into one is gathered together i feel and blamed on the DA,s.I write this now,because in 2 days time i visit the pd nurse,3 months after last appointment so as to be closely monitored.There,i will give my view,my Wife shall give hers.
Personally,i think that the Mirapexin has more positives than negatives,its just keeping the balance right,a tight rope of a situation.If my pole is taken away however,i will not be happy.Will let you know.
From the self control,totally aware,antagonist
Titan
Hi Titan, long time no debate.
My this is old ground, and I don't intend to dwell on it yet again for long. Here are the relevant points:
1. This ever increasing list of OCDs was provided to me by a Professor of Neurology & Neurosurgery who specialises (internationally) in this area, and who has been an expert witness in numerous criminal trials including my own. He has a 100% record in convincing judges and juries that PD patients suffering OCDs completely lose all willpower and self control, become totally addicted, and can't even tell right from wrong.
2. I was personally in such an OCD mental state continuously for 7 years, so talk with much experience. You, however, have never been there, so speak only from unqualified and disproven hypothesising.
3. If OCDs came your way, you'd now know what was going on, thanks to all these discussions. Hundreds of other PD patients prescribed DAs, however, never receive any warnings at all, and slip into terrifying OCD states without having a clue what's going on.
4. Most DA/OCD sufferers become obsessive in areas they've never ever had any interest in before.
5. The OCD traits of non-PD persons have no relevance here; this thread is purely about OCDs caused by prescribed PD medication. Equally irrelevant are your own betting successes or otherwise. If you're happy with a £1,500 win after waiting 27 years, good luck to you.
6. Glad to hear you've always had the "higher sex drive", I'm impressed. Higher than what?
7. Glad to hear you're nice and secure, you have no debts and your house is paid for. So was I. So were scores of others on this forum. But you can work bloody hard all your life to get all that and lose the lot in an instant, thanks to a few pills. I sincerely hope you don't find out the hard way.
Ray.
My this is old ground, and I don't intend to dwell on it yet again for long. Here are the relevant points:
1. This ever increasing list of OCDs was provided to me by a Professor of Neurology & Neurosurgery who specialises (internationally) in this area, and who has been an expert witness in numerous criminal trials including my own. He has a 100% record in convincing judges and juries that PD patients suffering OCDs completely lose all willpower and self control, become totally addicted, and can't even tell right from wrong.
2. I was personally in such an OCD mental state continuously for 7 years, so talk with much experience. You, however, have never been there, so speak only from unqualified and disproven hypothesising.
3. If OCDs came your way, you'd now know what was going on, thanks to all these discussions. Hundreds of other PD patients prescribed DAs, however, never receive any warnings at all, and slip into terrifying OCD states without having a clue what's going on.
4. Most DA/OCD sufferers become obsessive in areas they've never ever had any interest in before.
5. The OCD traits of non-PD persons have no relevance here; this thread is purely about OCDs caused by prescribed PD medication. Equally irrelevant are your own betting successes or otherwise. If you're happy with a £1,500 win after waiting 27 years, good luck to you.
6. Glad to hear you've always had the "higher sex drive", I'm impressed. Higher than what?
7. Glad to hear you're nice and secure, you have no debts and your house is paid for. So was I. So were scores of others on this forum. But you can work bloody hard all your life to get all that and lose the lot in an instant, thanks to a few pills. I sincerely hope you don't find out the hard way.
Ray.
p.s. Titan, I specifically resurrected this thread to help 2 new OCD sufferers, not to re-open past debates.
Your contribution hasn't brought anything new to the table, so please don't be determined to get the last word - it's all been said countless times.
Cheers.
Your contribution hasn't brought anything new to the table, so please don't be determined to get the last word - it's all been said countless times.
Cheers.
Impulse-Control Disorders in Parkinson’s Disease
By Joseph M. Ferrara, MD, and Mark Stacy, MD
ABSTRACT
Parkinson’s disease is a neurodegenerative disorder characterized by bradykinesia, rigidity, postural instability, and resting tremor. Increasingly, Parkinson’s disease has been associated with a broad spectrum of non-motor symptoms, such as olfactory loss, sleep disorders, autonomic dysfunction,
cognitive impairment, psychosis, depression, anxiety, and apathy. In addition, a minority of Parkinson’s disease patients develop compulsive behaviours while receiving dopamine-replacement therapy, including medication hoarding, pathological gambling, binge eating, hyper libidinous behaviour, compulsive shopping, and punding. These behaviours may result in psychosocial impairment for patients and therapeutic challenges for clinicians. This article reviews
the anatomic substrates, behavioural spectrum, associated factors, and potential treatments for dopamine-replacement therapy-related compulsions in Parkinson’s disease
To read more please visit http://mbldownloads.com/0808CNS_Stacy.pdf
By Joseph M. Ferrara, MD, and Mark Stacy, MD
ABSTRACT
Parkinson’s disease is a neurodegenerative disorder characterized by bradykinesia, rigidity, postural instability, and resting tremor. Increasingly, Parkinson’s disease has been associated with a broad spectrum of non-motor symptoms, such as olfactory loss, sleep disorders, autonomic dysfunction,
cognitive impairment, psychosis, depression, anxiety, and apathy. In addition, a minority of Parkinson’s disease patients develop compulsive behaviours while receiving dopamine-replacement therapy, including medication hoarding, pathological gambling, binge eating, hyper libidinous behaviour, compulsive shopping, and punding. These behaviours may result in psychosocial impairment for patients and therapeutic challenges for clinicians. This article reviews
the anatomic substrates, behavioural spectrum, associated factors, and potential treatments for dopamine-replacement therapy-related compulsions in Parkinson’s disease
To read more please visit http://mbldownloads.com/0808CNS_Stacy.pdf
Thanks for that, Cutiepie.
Not an easy read, but well worth it nonetheless.
Ray.
Not an easy read, but well worth it nonetheless.
Ray.
Ray of Sunshine,
Again and Again you come on here and tell people,not advise,TELL people what they should and shoulden,t do.I have my faults,but you are something else.Don,t try to make little of what i have to say.Where do you get your delusions of grandeur from.Are you the head of all that is pd.I won,t be told by you to post elsewhere.Go away and consider how little you know about the real me.
Are you jealous because contrary to your beliefs,some of us can be in a controlled and aware state of being whilst suffering OCD,in fact,rather than lose everything like you yourself have related in great detail on more than one thread.Some of us can actually harness the boost the medication gives,at the same time realising that we have to be careful and constantly aware.
I have spoken to numerous people and feel you hide behind and glorify your OCD ,behaviour.This is a place that used to be welcoming,then your name crops up.Tells everybody what they should and should not do.How can you be the highest authority in the the pd community.The last person is you, to go to if needing advice.Gossip in the cafe,ridicule,correcting people,making them feel awful.They are but a few of the controlling things you do.
Go and read something more interesting and i will
carry on here,i fall under the heading above,
as such,i will post every day a full page
And you can moan to your hearts content
Titan
Again and Again you come on here and tell people,not advise,TELL people what they should and shoulden,t do.I have my faults,but you are something else.Don,t try to make little of what i have to say.Where do you get your delusions of grandeur from.Are you the head of all that is pd.I won,t be told by you to post elsewhere.Go away and consider how little you know about the real me.
Are you jealous because contrary to your beliefs,some of us can be in a controlled and aware state of being whilst suffering OCD,in fact,rather than lose everything like you yourself have related in great detail on more than one thread.Some of us can actually harness the boost the medication gives,at the same time realising that we have to be careful and constantly aware.
I have spoken to numerous people and feel you hide behind and glorify your OCD ,behaviour.This is a place that used to be welcoming,then your name crops up.Tells everybody what they should and should not do.How can you be the highest authority in the the pd community.The last person is you, to go to if needing advice.Gossip in the cafe,ridicule,correcting people,making them feel awful.They are but a few of the controlling things you do.
Go and read something more interesting and i will
carry on here,i fall under the heading above,
as such,i will post every day a full page
And you can moan to your hearts content
Titan
.
Good morning Titan.
The title of this thread is clear. Unlike you, I myself HAVE been given dopamine agonists, and as a result suffered catastrophic obsessive/compulsive disorders for 7 years. My life (and bank balance) will never be the same again.
Since then I have tried to draw upon my experiences to help those who have had (may still be having) the same journey, to pull insufficiently-warned newcomers back from the brink, and where possible spread knowledge amongst patients, carers and professionals. To this day the ignorance of consultants and GPs about these matters, and their severity, is truly astounding.
I fail to see why this causes you a problem. If you think I'm personally obnoxious, aloof or on an ego trip, I can live with that. Why not start a thread about irritating contributors?
In the meantime THIS thread has helped many a sufferer, and continues to do so. I'd be grateful if you'd let it continue to do so.
Take care,
Ray.
.
Good morning Titan.
The title of this thread is clear. Unlike you, I myself HAVE been given dopamine agonists, and as a result suffered catastrophic obsessive/compulsive disorders for 7 years. My life (and bank balance) will never be the same again.
Since then I have tried to draw upon my experiences to help those who have had (may still be having) the same journey, to pull insufficiently-warned newcomers back from the brink, and where possible spread knowledge amongst patients, carers and professionals. To this day the ignorance of consultants and GPs about these matters, and their severity, is truly astounding.
I fail to see why this causes you a problem. If you think I'm personally obnoxious, aloof or on an ego trip, I can live with that. Why not start a thread about irritating contributors?
In the meantime THIS thread has helped many a sufferer, and continues to do so. I'd be grateful if you'd let it continue to do so.
Take care,
Ray.
.
In the house of commons when someone asks a question that has already been answered they are told "I refer the honourable gentleman to the statement I gave yesterday".
Ray, Titan give your fingers a break just say "IRHG to my post on page 42" and the other respond in kind and have a KitKat (other biscuits are also available). That top tip could save YOU hours and save the rest of us from feeling that OUR forum is returning to the bickering forum it has been before.
Just a thought, don't start on me.
Ray, Titan give your fingers a break just say "IRHG to my post on page 42" and the other respond in kind and have a KitKat (other biscuits are also available). That top tip could save YOU hours and save the rest of us from feeling that OUR forum is returning to the bickering forum it has been before.
Just a thought, don't start on me.
Hi Eck,
No problem,wise words.Ray came forward with revised list.Forever bringing up the same regurgitated message,slightly adjusted.I have spoken to people close to me in pd circles and don,t feel that Ray is in any position to tell anybody were they should post.It is rude and ignorant and any monitoring should be left to those who moderate,certainly not somebody with a track record of numerous transgressions.Those people i confide in can judge,Ray cannot,he knows not the depth of anything.Guess and scratch the surface is all,but no,obviously along with controlling,numerous bans,as well as winding up and upsetting people.He continues a relentless trail of turmoil.
I will post my views were i feel fit,would anybody on this forum like it if i told them where and what to post.I really don,t think that would go down well.So i stand my ground.I will not be bullied off a thread,especially when relevant.
Thanks Eck for the message,
i have not been posting much on here lately
Others haven,t neither,reasons?
Well he,s moderating again
All the best
Titan
No problem,wise words.Ray came forward with revised list.Forever bringing up the same regurgitated message,slightly adjusted.I have spoken to people close to me in pd circles and don,t feel that Ray is in any position to tell anybody were they should post.It is rude and ignorant and any monitoring should be left to those who moderate,certainly not somebody with a track record of numerous transgressions.Those people i confide in can judge,Ray cannot,he knows not the depth of anything.Guess and scratch the surface is all,but no,obviously along with controlling,numerous bans,as well as winding up and upsetting people.He continues a relentless trail of turmoil.
I will post my views were i feel fit,would anybody on this forum like it if i told them where and what to post.I really don,t think that would go down well.So i stand my ground.I will not be bullied off a thread,especially when relevant.
Thanks Eck for the message,
i have not been posting much on here lately
Others haven,t neither,reasons?
Well he,s moderating again
All the best
Titan
To Ray
I am in full agreement with Titan. You have made your point and we can understand the despair you feel. You can share your pain with us but, if you do, you have to accept any comments produced by your postings.
All of us can empathise with you, but you are inappropriately aggressive to comments that do not agree with your thoughts. That is no way to have a debate.
I hope the moderators can let this thread carry on.
Chris
I am in full agreement with Titan. You have made your point and we can understand the despair you feel. You can share your pain with us but, if you do, you have to accept any comments produced by your postings.
All of us can empathise with you, but you are inappropriately aggressive to comments that do not agree with your thoughts. That is no way to have a debate.
I hope the moderators can let this thread carry on.
Chris
Well done cutiepie for posting the link on ICD's.
I remember reading Professor Stacy's report back in 2010 and must say i was impressed by it. The report gives a great insight and shows real understanding on this issue. I would urge people to take time out and read it because for me it highlights some very important points. I wonder how many GP's, Neurologists or PD nurses in this country have read the report, which was produced by Professor Stacy who is based at the division of neurology in South Carolina?
I remember reading Professor Stacy's report back in 2010 and must say i was impressed by it. The report gives a great insight and shows real understanding on this issue. I would urge people to take time out and read it because for me it highlights some very important points. I wonder how many GP's, Neurologists or PD nurses in this country have read the report, which was produced by Professor Stacy who is based at the division of neurology in South Carolina?
All I did, folks, was post an updated list of obsessions (3 new entries), without comment. Doesn't seem unreasonable to me, given that said list is 100% on topic in a thread I opened in May to discuss that very subject.
Within hours came the first little dig from Spam95. A week later came the anticipated diatribe from Titan: neither relevant nor constructive, just the usual string of invective. Within a couple of hours I had answered all of Titan's points yet again, but at 3.50 this morning came a further tirade.
A neutral comment from Eck at 9.21 this morning triggered another string of pointless abuse from Titan at 9.59 am today, and yet more from Spam95 three minutes later.
Have we finished now boys?
Within hours came the first little dig from Spam95. A week later came the anticipated diatribe from Titan: neither relevant nor constructive, just the usual string of invective. Within a couple of hours I had answered all of Titan's points yet again, but at 3.50 this morning came a further tirade.
A neutral comment from Eck at 9.21 this morning triggered another string of pointless abuse from Titan at 9.59 am today, and yet more from Spam95 three minutes later.
Have we finished now boys?
I cannot believe that this is starting again. For those of you who have once again attacked Ray for providing information to people who are asking for it. What on earth are we supposed to do, lie to people or simply ignore their requests for information?
The very title of the thread makes it clear what the subject content is likely to be, so why do some people still get all hot under the collar? I know that it is an emotive subject but it is a very true side of what some of the drugs are capable of doing to our minds. Before you say it.....we also know that the drugs are a wonder drug for some people and for those that is great, but what about those that it isn't so wonderful for, should we just go away because we can't offer a response to DA's.
You are right..we are all entitled to our opinion, but that means that we will have different opinions. We accept your please accept ours. Newly diagnosed people need to know the good and the bad sides to this condition. If they don't then they don't need to enter this thread. I certainly don't enter all the threads on the forum, only those that interest me.
What is happening here is bullying and it should not be allowed to even surface again. Please do not turn this into another farce, if you dont agree then thats ok but please do not prevent newbies from accessing information.
Thanks Cutie for the link that you posted.
Glenchass
The very title of the thread makes it clear what the subject content is likely to be, so why do some people still get all hot under the collar? I know that it is an emotive subject but it is a very true side of what some of the drugs are capable of doing to our minds. Before you say it.....we also know that the drugs are a wonder drug for some people and for those that is great, but what about those that it isn't so wonderful for, should we just go away because we can't offer a response to DA's.
You are right..we are all entitled to our opinion, but that means that we will have different opinions. We accept your please accept ours. Newly diagnosed people need to know the good and the bad sides to this condition. If they don't then they don't need to enter this thread. I certainly don't enter all the threads on the forum, only those that interest me.
What is happening here is bullying and it should not be allowed to even surface again. Please do not turn this into another farce, if you dont agree then thats ok but please do not prevent newbies from accessing information.
Thanks Cutie for the link that you posted.
Glenchass
Maybe if PUK did what they promised to do, it might avoid some this bad feeling and verbal fighting, which keeps rearing its ugly head every few weeks?
If my memory serves me right following a number of OCD forum debates which were closed down, PUK promised a permanent "sticky" attached to the front page of this forum on the subject of OCD's. In fact i remember it being agreed at the last steering group meeting back in June and being put on the action plan.
The rationale for a permanent Medication OCD section of its own on the forum was as follows,
1) Newbies had one highly visible point of reference for all matters concerning OCD issues, rather than threads keep popping up all over the forum.
2) Any new research updates or media news about OCD's could be posted by pwp and PUK on to this section.
3) PUK could also put GENERAL information on this section regarding OCD side effects and signposting (with links) showing pwp and carers were to get help and support.
4) Pwp could use this section to post their own personal experiences both good and bad regarding OCD side effects.
If the above listed points were acted upon then it would be a good start and hopefully move things forward.
If my memory serves me right following a number of OCD forum debates which were closed down, PUK promised a permanent "sticky" attached to the front page of this forum on the subject of OCD's. In fact i remember it being agreed at the last steering group meeting back in June and being put on the action plan.
The rationale for a permanent Medication OCD section of its own on the forum was as follows,
1) Newbies had one highly visible point of reference for all matters concerning OCD issues, rather than threads keep popping up all over the forum.
2) Any new research updates or media news about OCD's could be posted by pwp and PUK on to this section.
3) PUK could also put GENERAL information on this section regarding OCD side effects and signposting (with links) showing pwp and carers were to get help and support.
4) Pwp could use this section to post their own personal experiences both good and bad regarding OCD side effects.
If the above listed points were acted upon then it would be a good start and hopefully move things forward.
Good on you Glenchass and Blueeyes47. Well said. Thanks, Lin2