Hi blueeyes47,
A few points.
1)Dopamine Agonists,the aftermath,i post once with my view and support at the very beginning then leave well alone.Not exactly high-jacked.
2)Now,you can post wherever you fancy.Post 3 times on here,then say"now i have said my piece i will leave this thread alone.Then go on to post a further 6 times on this thread.
3)The gambling thread,who put restrictions on that?I will quote the following"why not share your joy with us and post all your selections on here each day before racing starts".I post one apt choice because the relevance to posh bird,and its a big sin.We were having a friendly chat.Come on blueeyes,lets be fair here.
4)Another quote,from a big contributor on here ,"everybody has an equally valid view and deserves to be heard".
5)When have i ever told you where to post,i have always had the view that everyone should be able to post on any thread they like.I don't insult you or anybody.
I sometimes wonder why you act so.
All the best,
Titan.
Ho hum.
It seems to me that everything which needs to be said on these threads HAS been said. Until we hear of some exciting new research results, or yet another desperate newbie arrives with a horrific tale to tell.
But everyone seems to want to have the last word (or conversely wants to make sure the ""other guy" doesn't get it). And yes, I know I'll be accused of just such behaviour myself merely by posting this.
Come on folks, enough's enough.
.
It seems to me that everything which needs to be said on these threads HAS been said. Until we hear of some exciting new research results, or yet another desperate newbie arrives with a horrific tale to tell.
But everyone seems to want to have the last word (or conversely wants to make sure the ""other guy" doesn't get it). And yes, I know I'll be accused of just such behaviour myself merely by posting this.
Come on folks, enough's enough.
.
hi Lily,
You can be reassured my posting was not done through gritted teeth! It was totally sincere and came from the bottom of my heart. However i fully accept sometimes my passion could be viewed as confrontation by some people? Please believe me when i say, everything i do with regard to this subject, is totally genuine and sincere.
If I'm guilty of anything, its being passionate about wanting to do my best to ensure nobody in future goes through the hell i did! Its got nothing to do with me being bitter or jealous, as suggested by some folk in the past! I am passionate because its been nearly 10 years since the OCD issues first went public.
In my humble opinion that's several years too long, and the medical profession, Drug companies and to a degree PUK are not getting to grips with the problem. I believe in some cases this is for selfish or commercial reasons? lets face it, the stigma associated with people becoming addicted to Sex or Gambling, is a very negative image. Furthermore it fails to add any shareholder value, nor does it protect professional reputation and could even dis-courage charity giving!
To be honest the easy option for me would be to not get involved. However that's never been my style. I can personally assure you my objectives do not involve a campaign to scare people senseless about DA side effects. All i want is to see the "BAR" raised amongst the above interested parties in order to protect ALL pwp in the future. And for PUK to take some leadership, thus become more supportive and proactive, rather than just sitting on the sidelines as moderators and spectators.
Wishing you all the best.
kind regards
Stephen
You can be reassured my posting was not done through gritted teeth! It was totally sincere and came from the bottom of my heart. However i fully accept sometimes my passion could be viewed as confrontation by some people? Please believe me when i say, everything i do with regard to this subject, is totally genuine and sincere.
If I'm guilty of anything, its being passionate about wanting to do my best to ensure nobody in future goes through the hell i did! Its got nothing to do with me being bitter or jealous, as suggested by some folk in the past! I am passionate because its been nearly 10 years since the OCD issues first went public.
In my humble opinion that's several years too long, and the medical profession, Drug companies and to a degree PUK are not getting to grips with the problem. I believe in some cases this is for selfish or commercial reasons? lets face it, the stigma associated with people becoming addicted to Sex or Gambling, is a very negative image. Furthermore it fails to add any shareholder value, nor does it protect professional reputation and could even dis-courage charity giving!
To be honest the easy option for me would be to not get involved. However that's never been my style. I can personally assure you my objectives do not involve a campaign to scare people senseless about DA side effects. All i want is to see the "BAR" raised amongst the above interested parties in order to protect ALL pwp in the future. And for PUK to take some leadership, thus become more supportive and proactive, rather than just sitting on the sidelines as moderators and spectators.
Wishing you all the best.
kind regards
Stephen
hi titan,
Thank you for the feedback.
Wishing you all the best and sleep well.
Kind Regards
Stephen
Thank you for the feedback.
Wishing you all the best and sleep well.
Kind Regards
Stephen
Morning all 
Too good a day to be arguing the toss, lots to do today so have a good'un folks
We're all here for a purpose. Meditate on your mission, then use your gifts and talents to live your life on purpose. In doing so, you'll become an unending magnet for miracles.
Too good a day to be arguing the toss, lots to do today so have a good'un folks
We're all here for a purpose. Meditate on your mission, then use your gifts and talents to live your life on purpose. In doing so, you'll become an unending magnet for miracles.
Safe and sound.
.
Kyloe:-
Re your thoughts:
"We're all here for a purpose. Meditate on your mission, then use your gifts and talents to live your life on purpose. In doing so, you'll become an unending magnet for miracles."
I'd love you to open a thread to fully debate these hypotheses.
My initial comments are:
We're all here for a purpose. No we're not. We're here as the accidental result of the Big Bang many billions of years ago. Our sun is one of around 300,000,000,000,000,000,000,000 in this Universe, none of which (as far as we know) supports intelligent life apart from ours. Not a lot of purpose there. As Carl Sagan wisely said, "It is far better to grasp the Universe as it really is than to persist in delusion, however satisfying and reassuring."
Meditate on your mission. I have no mission upon which to meditate.
Use your gifts and talents to live your life on purpose. I have no gifts or talents (apart from those which have developed inevitably, in line with Darwinist theory. Nor is there any purpose. As Stephen Hawking said, "It is not clear that intelligence has any long-term survival value."
You'll become an unending magnet for miracles. No such thing.
.
Kyloe:-
Re your thoughts:
"We're all here for a purpose. Meditate on your mission, then use your gifts and talents to live your life on purpose. In doing so, you'll become an unending magnet for miracles."
I'd love you to open a thread to fully debate these hypotheses.
My initial comments are:
We're all here for a purpose. No we're not. We're here as the accidental result of the Big Bang many billions of years ago. Our sun is one of around 300,000,000,000,000,000,000,000 in this Universe, none of which (as far as we know) supports intelligent life apart from ours. Not a lot of purpose there. As Carl Sagan wisely said, "It is far better to grasp the Universe as it really is than to persist in delusion, however satisfying and reassuring."
Meditate on your mission. I have no mission upon which to meditate.
Use your gifts and talents to live your life on purpose. I have no gifts or talents (apart from those which have developed inevitably, in line with Darwinist theory. Nor is there any purpose. As Stephen Hawking said, "It is not clear that intelligence has any long-term survival value."
You'll become an unending magnet for miracles. No such thing.
.
Good Morning Lilly
I see the antagonists are out and about yet again. Tis sad that they feel the need
Only intuition can protect one from the most dangerous individual of all, the articulate incompetent.
I see the antagonists are out and about yet again. Tis sad that they feel the need
Only intuition can protect one from the most dangerous individual of all, the articulate incompetent.
Isn't it weird how you can invite someone to take part in a genuine and interesting scientific/theological debate, and their response is to ignore you completely and talk to someone else? Not even the courtesy of declining.
This post has been edited because portions of it do not comply with our terms and conditions. You can find our terms and conditions at: http://www.parkinsons.org.uk/forum-terms-and-conditions.aspx
This post has been edited because portions of it do not comply with our terms and conditions. You can find our terms and conditions at: http://www.parkinsons.org.uk/forum-terms-and-conditions.aspx
Having removed myself from the forum, spent some time lurking, and now posting furtively hoping that I won't attract criticism or even worse, be ignored, I have given a lot of thought my expectations of this forum.
I think I left because of the bickering, the dominant personalities of some , the constant "neediness" of others, and I become anxious about the fact that some people were not all they seemed online. It became apparent that in some cases, people had a separate persona on line where they could be whomever they chose, hiding behind a nom de plume. Also I became aware that the forum posts, in the absence of a "face to face" encounter with the aid of facial expressions and voice and body language "clues" can be interpreted in inumerable ways.
But with further thought and contemplation I decided that the forum actually mirrors the real world anyway. Some people are not what they seem Some people can't cope without a great deal of support. Fat/thin, pretty/plain, active/passive, sporty/academic. You keep close the people you like, you stay away from those you don't. You don't expect everyone to like you or agree with you. You listen to other people's views and make up your own mind what you believe in. If you make a mistake or hit out in anger, you apologise.
Having a degenerative, incurable, progressive brain disease isn't an excuse to be a lesser person than you are. So hey people, lets strive to be a little more tolerant. ( and I include myself in that.)
I apologise to the posters on this thread who may interpret this post as highjacking. Wishing you sunshine in your lives.
Toots
I think I left because of the bickering, the dominant personalities of some , the constant "neediness" of others, and I become anxious about the fact that some people were not all they seemed online. It became apparent that in some cases, people had a separate persona on line where they could be whomever they chose, hiding behind a nom de plume. Also I became aware that the forum posts, in the absence of a "face to face" encounter with the aid of facial expressions and voice and body language "clues" can be interpreted in inumerable ways.
But with further thought and contemplation I decided that the forum actually mirrors the real world anyway. Some people are not what they seem Some people can't cope without a great deal of support. Fat/thin, pretty/plain, active/passive, sporty/academic. You keep close the people you like, you stay away from those you don't. You don't expect everyone to like you or agree with you. You listen to other people's views and make up your own mind what you believe in. If you make a mistake or hit out in anger, you apologise.
Having a degenerative, incurable, progressive brain disease isn't an excuse to be a lesser person than you are. So hey people, lets strive to be a little more tolerant. ( and I include myself in that.)
I apologise to the posters on this thread who may interpret this post as highjacking. Wishing you sunshine in your lives.
Toots
My thoughts entirely Tootsie. You are a mind reader? I welcome your contributions to this forum
Thank you for such a refreshing and forthright post Tootsie....and welcome back
In real life if there is someone i dont like or find difficult to comprehend then i either ignore or say a polite hello and and walk on without engaging in any serious chat, especialy if my intuition tells me its going to be confrontational.
Here on the forum i'm no different in that there are several posters who i choose for whatever reason to ignore so as to avoid confrontation....and/or personal remarks. There is one person whom in one thread i publicly stated i would never respond to his posts again. Thats pretty much what i would do in real life too, if i had the misfortune to meet such a person.
I prefer the positive types, the ones who realise that yesterday has gone, today is already here, and tomorrow needs planned for, in the meantime we should try and make the most of today....just in case tomorrow does'nt come.
Sorry Lilly for deviating the thread title, moderator please feel free to remove.
HAVE A GOOD DAY ALL .......I shall
If you love the life you live, you will live a life of love.
In real life if there is someone i dont like or find difficult to comprehend then i either ignore or say a polite hello and and walk on without engaging in any serious chat, especialy if my intuition tells me its going to be confrontational.
Here on the forum i'm no different in that there are several posters who i choose for whatever reason to ignore so as to avoid confrontation....and/or personal remarks. There is one person whom in one thread i publicly stated i would never respond to his posts again. Thats pretty much what i would do in real life too, if i had the misfortune to meet such a person.
I prefer the positive types, the ones who realise that yesterday has gone, today is already here, and tomorrow needs planned for, in the meantime we should try and make the most of today....just in case tomorrow does'nt come.
Sorry Lilly for deviating the thread title, moderator please feel free to remove.
HAVE A GOOD DAY ALL .......I shall
If you love the life you live, you will live a life of love.
Hi Tootsie,
Spot on in what you say.Also,the choice of thread title to air your view.Peoples moods change constantly,heightened by the condition we are all coping with.As in everyday life,there will be differences.I think many come on here and post a message,which suits their mood at the time.The following day on reviewing what they have written,may wonder what possessed them to post in such a way.I have.
As in everyday life,things are said and often regretted.People are hurt,upset,make up,only for another argument which leaves them in the same situation.We can only interpret in our own way what information is voiced on here,maybe reading between the lines.I personally forgive any personal disagreements i have on here.Understanding that words can be misread,put across wrong.Life is too short to bear grudges.The real person behind the message,most often mysterious, is entitled to their view and even when hurtful or nasty,highlights a problem in itself which indicates how passionate,upset,or even maybe fed up/depressed they are.
I think if most people with differences on here came face to face with each other,they would probably get on well.Most people describe their condition and problems they cope with daily on this forum.I think this should be taken into account,because emotions are constantly in turmoil with pd.Sometimes,especially if virtually housebound for example,with not a lot of external stimulus.Posting feelings and emotions on here is one of the few releases in a day filled with struggles,hardship or sickness.Negative,argumentative posts are to be expected,debated,discussed and then put to one side.Then make up and move on.
I will probably look back at this tomorrow and wonder what i was talking about.My mood today,Reflecting/melancholy.
All the best
Titan
Spot on in what you say.Also,the choice of thread title to air your view.Peoples moods change constantly,heightened by the condition we are all coping with.As in everyday life,there will be differences.I think many come on here and post a message,which suits their mood at the time.The following day on reviewing what they have written,may wonder what possessed them to post in such a way.I have.
As in everyday life,things are said and often regretted.People are hurt,upset,make up,only for another argument which leaves them in the same situation.We can only interpret in our own way what information is voiced on here,maybe reading between the lines.I personally forgive any personal disagreements i have on here.Understanding that words can be misread,put across wrong.Life is too short to bear grudges.The real person behind the message,most often mysterious, is entitled to their view and even when hurtful or nasty,highlights a problem in itself which indicates how passionate,upset,or even maybe fed up/depressed they are.
I think if most people with differences on here came face to face with each other,they would probably get on well.Most people describe their condition and problems they cope with daily on this forum.I think this should be taken into account,because emotions are constantly in turmoil with pd.Sometimes,especially if virtually housebound for example,with not a lot of external stimulus.Posting feelings and emotions on here is one of the few releases in a day filled with struggles,hardship or sickness.Negative,argumentative posts are to be expected,debated,discussed and then put to one side.Then make up and move on.
I will probably look back at this tomorrow and wonder what i was talking about.My mood today,Reflecting/melancholy.
All the best
Titan
Great posting Tootsie and Titan, your words have given me food for though also. The condition that we share does make us prone to mood swings and because we are unable to see the faces of our comrades the written word can be taken in the wrong context. I too have been guilty of being less than generous with my opinions and for that, my apologies.
Sorry Lily for my hijack, I'll make a hasty retreat now!!!
Glenchass
Sorry Lily for my hijack, I'll make a hasty retreat now!!!
Glenchass
Well said tootsie and titan.
Parkinson's Disease affects people in VERY different ways. The opinions and experiences of pwp on this forum will always mirror this. Therefore i guess we should ALL try harder to respect what others say and never judge them for it.
regards
Stephen
Parkinson's Disease affects people in VERY different ways. The opinions and experiences of pwp on this forum will always mirror this. Therefore i guess we should ALL try harder to respect what others say and never judge them for it.
regards
Stephen
Line drawn.
Moving on.
Moving on.
Hi Kyloe, Tootsie and Glenchass
I could never accuse anyone of hijacking this thread for posting positive, constructive comments. It’s true that it was originally intended to provide a refuge for people who had not experienced any serious side effects from DAs to talk about their medication without being criticised by those who had but, since then, there has been a sea-change of attitude from both sides, with everyone seeming more tolerant and understanding of each other. I think this is wonderful, and if the tone of the thread is evolving into something far better than its original intention, and people are talking to each other rather than arguing, this can only be a good thing.
Ray, why should anyone want to draw a line under it?
I could never accuse anyone of hijacking this thread for posting positive, constructive comments. It’s true that it was originally intended to provide a refuge for people who had not experienced any serious side effects from DAs to talk about their medication without being criticised by those who had but, since then, there has been a sea-change of attitude from both sides, with everyone seeming more tolerant and understanding of each other. I think this is wonderful, and if the tone of the thread is evolving into something far better than its original intention, and people are talking to each other rather than arguing, this can only be a good thing.
Ray, why should anyone want to draw a line under it?
blueeyes47 said, “Well said tootsie and titan”.
Personally I agree. I think you are both right.
The Cyber/virtual world offers us a space where we can meet, but at the end of the day most of us lack the personal visual contact that would normally allow us to determine how someone was getting across an opinion.
Perhaps we would get on better with each other if we had the possibility to be seated at a round table. and perhaps sadly no.
Maybe , we need to reflect more on what Rainer Maria Rilke said,
“ All emotions are pure which gather you and lift you up; that emotion is impure which seizes only one side of your being and so distorts you”.
If only we could stop fighting amongst ourselves and work for one cause and row in the same direction.
This is something I truly belive many wish for but then, the world is not perfect.
Personally I agree. I think you are both right.
The Cyber/virtual world offers us a space where we can meet, but at the end of the day most of us lack the personal visual contact that would normally allow us to determine how someone was getting across an opinion.
Perhaps we would get on better with each other if we had the possibility to be seated at a round table. and perhaps sadly no.
Maybe , we need to reflect more on what Rainer Maria Rilke said,
“ All emotions are pure which gather you and lift you up; that emotion is impure which seizes only one side of your being and so distorts you”.
If only we could stop fighting amongst ourselves and work for one cause and row in the same direction.
This is something I truly belive many wish for but then, the world is not perfect.
Lily
I thought that was what everyone WANTED me to say and do - I was just trying hard to be conciliatory.
Please don't regard every word I utter as being threatening.
Kind regards,
Ray.
I thought that was what everyone WANTED me to say and do - I was just trying hard to be conciliatory.
Please don't regard every word I utter as being threatening.
Kind regards,
Ray.
Hi,
So pleased to read the latest friendly messages on here.Glenchass and Blueeyes,i have learn't a lot myself going back over previous postings.Have been doing a lot of thinking and that includes respecting/understanding more the feelings of those who have been through what i have not.I saw no harm in your posting Ray.I read it as great,lets all move forward together.We all may meet up some day,maybe to toast a breakthrough in research,with one united big smile on our faces.
All the best
Titan.
So pleased to read the latest friendly messages on here.Glenchass and Blueeyes,i have learn't a lot myself going back over previous postings.Have been doing a lot of thinking and that includes respecting/understanding more the feelings of those who have been through what i have not.I saw no harm in your posting Ray.I read it as great,lets all move forward together.We all may meet up some day,maybe to toast a breakthrough in research,with one united big smile on our faces.
All the best
Titan.