OH is in hospital yet again. This time it’s been 12 + weeks and last time 20 weeks. Both times the doctor, a movement disorder doctor, not a neurologist, (are they they same?) has increased OH’s medication much against our wishes, and to a huge extent from 750mg a day to 1250mg a day, of Madopar.
We feel it has added to OH’s confusion. It is one of many side effects of a Madopar. Doctor refuses, despite our concerns, and also having a registered Health & Welfare POA done many years ago when OH had capacity, to listen to us when we want him to gradually decrease the huge increase that he has instigated to see if it has actually contributed to OH’s confusion. He does have Parkinson dementia and fluctuating capacity and tells us that he doesn’t want the increased meds BUT the doctor insists on asking OH and OH agrees, as he won’t say no to a doctor.
Daughter is thinking of making an official complaint but I am concerned that that will make the situation worse.
This doctor has only known OH for their 2 hospital admissions, (previous neurologist was over the border in a different health board and we now can’t see them any more as our health board has a Parkinsons consultant but it is not the same person as this doctor).Doubt we could do anything anyway as OH is an inpatient so couldn’t see anyone else right now. I have monitored and previously had some control over OH’s meds with our previous consultant for over 20 years, what has worked, what has been tried/what hasn’t etc. My experience of medication with my OH and our opinions are being ignored.
If I am proved wrong then at least I will have tried to see if the huge increase of Madopar has or has not made their confusion worse.
What can we do and where to go next with this doctor who ignores us?