I’m currently drug free. I was diagnosed in September 2014 after months of tests. I didn’t go on meds for at least a year then tried RequipXL. Got up to 4mg but didn’t react too well to an increase beyond that, and experienced disturbed sleep. Changed to Rotigotine patches and things were ok for about 3.5 months, when my skin started to react and I was left with red squares for weeks after removing each patch. I also started to feel quite unwell at times, and noticed that I was better on days when I’d forgotten to take my meds, or if I took the patch off.
I came off all meds about two months ago and my head felt immediately clearer. The Parkinson’s nurse wasn’t keen on me doing so and wanted me to go back on RequipXL. The neurologist wanted me to go on Levodopa last time I met him, which was a year ago.
I’m staying off meds as long as I can. I feel a bit more stiff and achy but movement helps. Also coffee!!