Aye aye buscuits
how's the tourist doing ? Bet your still supping up the sauce you lucky bugger and am stuck here in the p.....g rain with stuttering legs and to top it all my left leg is swelling up now from the knee down I'll have to go see a dr it's no normal gee whiz am a boring b......d the night aw well you enjoy your time over there catch you later
Ian
aye aye ian hows it goin?,weather here been hot, im curious about whats wrong with your other leg,ihave a wee prob with my other leg too but mine is severe distonia in my foot which lasts about 10 mins and mostly caused by having a vape first thing in the morning before my meds kick in, sometimes it can happen if im standing for too long before meds kick in, i just cant work it out as my parky is all down my right side,oh well time for bed, ive drank enough beer for 1 day.
Aye aye buscuits
don't know what's wrong but I will try and get an appointment this week , when I have a vape my left leg just won't work dam it it's so annoying but I'm puffing away now as I'm posting you now , anyway sounds like your enjoying yourself good man keep it up drink. The place dry you'll sleep well , I'll be in toutch when I find oot what.the story with the leg is . Take care buscuits
ian
aye aye ian long time no hear, getting the boat back to the uk on tuesday just in time to see neuroligist on thursday and give him my latest report on how crap i feel with him altering my medication, i need my old meds back , anyway how are you ?
Hey buscuits !
Hope you had a good time well as good as you could manage anyway with feeling crap , as for my walking what walking am aboot fu...d as far as that goes but never mind I can cycle , run , walk backwards , and drive so life's no that bad ! . So you don't fancy staying in France then ? Hope you get on alright with neuro and get something sorted oot
Ian
Aye aye buscuits
how did it go with neuro ? Hope your doing alright , am no great just now but it's. No all bad we always get by eh ! Don't know when I will see neuro it's probably ages yet , catch you later
Ian
aye aye ian ,still in france, re arranged ferry time to tuesday next week, its hard to believe but there was yet another prob with car, its been at garage for a few days,got it back this affy, it was leaking coolant,parts , labour 146 euros,dam car has cost more to fix than to buy,i can only hope i can get it to be trouble free for a few years to get my moneys worth. ive had to cancel neuro, they say it might be another 2 mths before i get to see him again, in the mean time im gonna go back to see my gp and hopefully he can put me back on old meds as i dont function well on these new ones, i seem to wear off to soon and its very difficult to walk, catch ya later.
Sake buscuits.
Tell me it wasn't the water pump as if the garage that sorted the cylinder head should have put a new timing belt on and you do the water pump at the same time it comes as a kit so check when you get home . Poor show that bloody car ,and that drugs your,on don't sound good hope you get home okay without any more probs , think I would set fire to car and just walk away useless tub of a thing ! Aw well good luck to you things can only get better take care ma boy
Ian
aye ian , set me car on fire, that made me laugh out loud,something i havent done in a while, take care bye for now.
Aye aye buscuits
why not burn the b.....d thing it's giving you more grief than the bloody PD , Christ. Almighty there's just so much a man can take , any way it's no my car shut up Ian ha ha!!!!, and here's me thinking my wife can be a nag but that dam car o am telling ya my problems are nothing to yours , hope you can get your med sorted oot phone p nurse and lay it on a bit thick that Meds not good she might be able to sort you out with a fast prescription good luck to you ma boy
ian
Listen to your body rather than the doctors and don't forget we are the experts. Imagine instead of symptoms these were signs the body was trying to heal itself including mental processes and that Parkinson's was on a spectrum with other neurological disorders such as autism. Good luck and remember trust yourself.
Thanks for all comments
I've tried Levadopa on and off for 6 months. I get no side effects, no beneficial effects, absolutely nothing happens. It takes 6 months to get to see a consultant by then I'm worried sick. Anyone know why Levadopa doesn't work?? Thanks
It's my firm belief that the doctors have got it wrong and our bodies are trying to help themselves in spite of the drugs, so don't worry and try thinking of your symptoms differently.
Hi Havana,,
Sorry to hear you are struggling with your medications it is a sad fact that the medications do not work for everyone is it only Levadopa they have tired you on there is a long list of others that could be worth you considering. And you DO NOT have to wait 6 months every time the medications should show you if they are working or not after about 2 weeks. Personally I would give them 2 months to properly take effect, and if they do not call your neurologists secretary and request a medication review. Sometimes we have to be a pain in their side to get what we need and am entitled to.
They cannot refuse you get tough with them it can only help you fight this condition in the end.
I wish you good luck let me know how you get on.
BB
Just a thought Havana, but have you read the thread about TMJ (sometimes referred to as TMD)?
I find this very interesting and worth looking into........might be the answer to all your problems.
Twinks.
hello havana,i was just wondering what mg levodopa you take per day?
