Thanks for the messages. Nice to know there's someone out there. I stopped taking Levedopa because it had no effect on me. None of the drugs have made any difference. I see the local nurse who is very good but she tells me to see my GP who then refers me to the consultant who doesn't offer any solutions. I'm now drug free but unable to find out why there are no drugs to help me. I don't have a tremor but my right arm is stiff and walking is very difficult. I just seem to be going around in circles and struggling with no help. The nurses on the helpline are very kind and helpful. What's going to happen as the condition worsens with no drugs to help me? Does anyone know what can be done? I'm not able to get answers from anyone. I can't live like this....................
hello havana,im wondering how long did you take levodopa for,?only cause when i changed from madopar to stalevo it took me about 2 mths to get used to it,then i felt i was getting a better quality of life back.
Aye Havana
am much the same so far nothing seems to be working
aye aye ian, hoping i get car tomorrow they have found oil leak and waiting for a part,ive made a bit of time and im hopefully going france on monday,i will keep you posted,over and out.
Aye aye buscuits
please tell us your all sorted out with car back ? How's the form with yourself ? Am soaked one day and roasting the next . Summer time weather don't you just love it at least when the weathers good you can get the wee lady outside to play it tiers them out better ,
ian
aye aye ian , yes little angel burnt out and fast asleep, its nice to have warm weather but when its hot like it has been it doesnt agree with me and my parky i just suffer more ,its a must going to bed with a fan blowing on me,but bad news about the car it wont be ready till monday,so they say!hows your day my friend?
Aye biscuits
warm weather can be a bit uncomfortable I find it hard going but the boy that works with me totally hates the heat , ye cold is worst for my PD though . Friday again though it soon comes round we all get a wee bit high at work knowing no getting up tomorrow you know yourself what like . Bummer about that bloody car Christ if they dinna get it oot of there it will be growing roots , Aye you'll be enjoying the peace and quiet when ever the wee lady conks out heaven eh !! I was wondering if some of us forum talkers could meet up next year somewhere in Britain for a wee holiday break one to think about if yous are up for it no one has organised anything yet but it would be good crack to get all us shakers together , take care my boy and good luck with car
Ian
hi its Mick ive been having similar symptoms and find Madopar dispersable a great help i take four tablets (2 at100/2.5mg and 2 at 50/12.5mg) 4 times a day along with other medication hope this helps regards Mick
Hi Havana, If there are no drugs that work on your symptoms then DBS is worth exploring I was dx at 47 am now 50 and am hoping to have this done this year. I take 39 tablets per day and injection, to correct the distonia,
My Advice to you is a someone suffering with this condition Research the DBS deep brain stimulation.
I am not medically trained just morally due to suffering with pd when my specialist suggested this to me I thought he had gone loopy but he is top of his field. And I do respect his knowledge.
This condition can be trying at the best of times so do try to not let it consume you.
Hope this helps.
BB
hello ian, getting together us shakers would be an interesting holiday but im not sure i can afford it for a long time, im going france in a day or two and the car is ready to pick up today,my diskinisea has just got worse as i now know the bill . £2300. can you believe it ! ,bye for now.
Aye biscuits
you will manage this meet up its next year no this one that will give you plenty time ha ha !! That's a heafty bill you got there . Hope they have done a good job on it with no further probs you will need to get a bike and get the wee lady started on one it would burn up her energy and keep you fit and never cost £2300 !!! Aw well that's life when are you planning France then ? If your taking that car hope the bugger keeps going !! Right buscuits good luck ma boy all the best
Ian
aye ian , going france soon , after i take damm car back,brakes are not working properly.
Good god buscuits what next !!!! What are they doing (the brakes ) ?? Your in a bad way
aye ian there doin brakes today might have it back tomorrow,gonna cost another £300 or so, but im not getting down about it, life must go on hey ho
Hope that's it now surely happy motoring .aye just a bad spell , you will be on hols soon that will keep yo happy good to have something to look forward to . How's the walking these days ? Am no great just now ach it keeps me moaning though ha ha !! Well good luck with everything if that bloody cars gona cost anymore toutch the dam thing ha ha !!
Ian
aye ian , happy days now, on way to france tomorrow night to get ferry about 8am friday, my legs are touch and go , depends how much vaping i do, how are you? i will keep in touch as im taking laptop with me, bye for now.
Aye buscuits
Good glad your on top form the break will do you the world of good , aye am the same vaping just destroys ma legs and I start freezing , but dam it I can't stop puffing the dam thing am totally hooked on it , aw well you have a good break and take it easy all the best ( no vap till you get there ) toraloo
Aye aye buscuits
how's the holiday going then you getting p....d on the wine over there ?
Ian
bonjour ian,finally managed to get internet connection,all fun and games here, not into the wine but the beers nice ,pelforth 5.8%,bye for now.
Good stuff am on tennents 4-% pea water ha ha !! Enjoy your time over there catch you later
Ian