Duodopa - NHS says no

hi fed

know where your coming from my legs have given up on me ,getting about 2 -3 hrs on time ,dbs controlling shakes,tremors complete success ,but ive been taking the highest dosage of sinemet makes no difference even tried madopar no joy .i was ok 14 months now this where does it stop !

 

           Hello my friend

                             Gus you would benefit from Ddopa me thinks, I was in exactly the same situation, none of my drugs were working, so I had no choice really ,it made a massive difference to my life I could walk and talk at the same time stand upright  write a  letter and though it seems  like it is not keeping up with the pace of  dpmeine cell loss, it is possible to increase the dosage which I have done and things have stabilised  for how so my mindset has much improved, but for how long,well its usually its about about 4 to 8 weeks as opposed to 18 to40 weeks before intervention i necessary, the rate of loss of effectiveness  is different for  all but it certainly worked for me'

                  Joke, ( This bloke was walking down the street waving his arms about and running up to people shouting  "IM GOD,,IM GOD,, IM GOD",well this guy  walks up to him and tries to calm him down,, "CAbarLM DOWN MAN,, CALM DOWN look lets go into this  bar and we can have a pint and talk about it"

          So this  IM GOD guy,, agrees and as the two walk into the  pub the manager spots this nu ///er and says"  OOH GOD  !!  NOT YOU AGAIN",,,,,,,,,,,,BFN GUS

                                              FED

 

 

 

 

evil THIS IS ME NOW, previously I wasbig grinandcoolas I am feeling much better or was until I watched the news and    I listened to the item regarding that arse of a  BAS///d  dentist who bribed game wardens in zimbabwe  to end the life of that beautiful big cat , a finer example of the king of the Animal kingdom the Lion, you would not find anywhere,, what this fec???g  cretin obviously could not give a flying  ???k about is he murdered the top man  in the pride thus all the suitable males will now try to muscle in and take over , and as there are cubs the incomer will kill them so instead of the magnificent leader being snuffed out by this dickhead  you can say goodbye to   any cubs, (six ), to say I am enraged furious and hypersonic with pure undiluted hate for this pig this lame excuse for a human,,well he is  not human he is very  large dog turd of a species which really should become extinct, the HUMAN RACE, and further more if we do become extinct and life has to start again,, please   please   Mr evolution no homo sapiens  get it right  this time.sad face

                   The reason I have posted this in the shadow of the great  Eck is he always  catches my attention and also I tend to do a incredible hulk impersonation when I read such sad tales of this kind not recommended,, calm  calm,  BFN

                                                      FED

hi Gus

don't know if this is helpful http://goo.gl/nnwZPa

 

Thanks turnip really interesting I have just started talking b12 vitamins and started riding a bike every otherday to try strengten legs up.going on holiday 14th September 2 weeks in turkey recharge my body if walking no better .going to phone bristol to get retuning to see if anything can be done. Thanks again for this information cheers

 

  Hello bcingu

          Greetings many old buddy, big grincool me and my Bro  FEDEXLIKE (with the raybanns)  I was clicking through the vast libraries stored here and came upon your reply to my Brothers posting and he asked  me to enquire as to your wellabilityness, I hope you have not had your life crumble around you ,as old FED has, his marriage has all but vapourised and the possible loss of  his wife is destroying him they have been together  since 82 and were devoted until the arrival of BLACKHEART in their lives,this evil entity has slowly changed my  dear Bro , so much so that we dont talk anymore I am ashamed of the way he  behaves now, oh when pd has given him a few hrs respite   he will visit  and we will play chess  or scrabble, his  favourite though is snooker I was lucky back in 85 to aquire  a model engineering business and was even luckyer  luckeeer lukyer bugger  I  was offred aufrrered a tidy £1.222 567 sum which  I am sure you will agree is a usefull nest egg some £7xx xx6 92p was invested in a hoiuse in Northumberland with  carefully adapted library was turned into a snooker room, now my Brother is  or  should I say was a briliant  snooker player and I do not exaggerate  when I say he was as good as MR INTERESTING  Steve Davis he went to Newcastle when there was a snooker tournament on  and a few  famous players of  old were giving exibitions   and he played a couple of shots with the ultra quick  Tony Drago  who was impressed, Drago went  on to  beat  Davis   so  ther you have a little aside  the  skills my  Bro had  have gone  I will post this now

 house

coolcool

Me a ging   ad if you are having any  of  he multiple  side and my Brother

                    Yes we do look like twins but he is 2yr older.

       I had to fire off the last post ,, its a case of post it or youve lost it or  Loast it  anyways the reason I am poasting his post is to enknowledgeate myself, with FEDS full  backing as to how   you are managing with DD  are  you having  the multiple side effects as I am  err  hmmp err  my Bro is having also  too as well or not wwhatever  your predicamentability  My sincerreable goodly wishmasterfullofhappy to you and  yourze

                                                     OTANheavy222

Hello Maria

                  How are you Finest warrior Shieldmaiden

     I am instructed by  my  Brother  Broadfin  to ask of your wellness I will await your resplnse before reeepleyeing its binawwile  since you havreve  spoken.

                                        OTANheavy222cool

big grinMe without Raybanns cool and with.

          Hello wise one, I have been using my head ??  as a counterbalance for  some time now, I find the  trick works when getting dressed  or  undressed as ny  posture goes into stoop mode when this form of activity is attempted its so frustrating when my posture control bu@@??s up as everything I do is worsened %110 so I put 2plus 2 together and found that if I  keep upright when problems occur I can function ,the Duodopa is stil working though not as effective and the shutdowns are horrific and  worse they are unpredictable and  no  warning signs, I  can be  chatting away no   probs  then bang  end of,, well anything I was attempting really,  a quick stab at the boost button and 1/2 hr later Im up to speed again  but  and  its A BIG BUT I am only allowed 3 booosts  per day in a  emergency per day, 4  but nearly every day its a emergency  now my friend so as I inject  more gel  I am becoming  tolerant of my drug and then I need  more  for  the same effect and  so  on and  so on, oh what  fun  we have.

                                              Kindest  Regards  FEDS  Bro   OTANheavy