know where your coming from my legs have given up on me ,getting about 2 -3 hrs on time ,dbs controlling shakes,tremors complete success ,but ive been taking the highest dosage of sinemet makes no difference even tried madopar no joy .i was ok 14 months now this where does it stop !
Gus you would benefit from Ddopa me thinks, I was in exactly the same situation, none of my drugs were working, so I had no choice really ,it made a massive difference to my life I could walk and talk at the same time stand upright write a letter and though it seems like it is not keeping up with the pace of dpmeine cell loss, it is possible to increase the dosage which I have done and things have stabilised for how so my mindset has much improved, but for how long,well its usually its about about 4 to 8 weeks as opposed to 18 to40 weeks before intervention i necessary, the rate of loss of effectiveness is different for all but it certainly worked for me'
Joke, ( This bloke was walking down the street waving his arms about and running up to people shouting "IM GOD,,IM GOD,, IM GOD",well this guy walks up to him and tries to calm him down,, "CAbarLM DOWN MAN,, CALM DOWN look lets go into this bar and we can have a pint and talk about it"
So this IM GOD guy,, agrees and as the two walk into the pub the manager spots this nu ///er and says" OOH GOD !! NOT YOU AGAIN",,,,,,,,,,,,BFN GUS
THIS IS ME NOW, previously I wasandas I am feeling much better or was until I watched the news and I listened to the item regarding that arse of a BAS///d dentist who bribed game wardens in zimbabwe to end the life of that beautiful big cat , a finer example of the king of the Animal kingdom the Lion, you would not find anywhere,, what this fec???g cretin obviously could not give a flying ???k about is he murdered the top man in the pride thus all the suitable males will now try to muscle in and take over , and as there are cubs the incomer will kill them so instead of the magnificent leader being snuffed out by this dickhead you can say goodbye to any cubs, (six ), to say I am enraged furious and hypersonic with pure undiluted hate for this pig this lame excuse for a human,,well he is not human he is very large dog turd of a species which really should become extinct, the HUMAN RACE, and further more if we do become extinct and life has to start again,, please please Mr evolution no homo sapiens get it right this time.
The reason I have posted this in the shadow of the great Eck is he always catches my attention and also I tend to do a incredible hulk impersonation when I read such sad tales of this kind not recommended,, calm calm, BFN
Thanks turnip really interesting I have just started talking b12 vitamins and started riding a bike every otherday to try strengten legs up.going on holiday 14th September 2 weeks in turkey recharge my body if walking no better .going to phone bristol to get retuning to see if anything can be done. Thanks again for this information cheers
Greetings many old buddy, me and my Bro FEDEXLIKE (with the raybanns) I was clicking through the vast libraries stored here and came upon your reply to my Brothers posting and he asked me to enquire as to your wellabilityness, I hope you have not had your life crumble around you ,as old FED has, his marriage has all but vapourised and the possible loss of his wife is destroying him they have been together since 82 and were devoted until the arrival of BLACKHEART in their lives,this evil entity has slowly changed my dear Bro , so much so that we dont talk anymore I am ashamed of the way he behaves now, oh when pd has given him a few hrs respite he will visit and we will play chess or scrabble, his favourite though is snooker I was lucky back in 85 to aquire a model engineering business and was even luckyer luckeeer lukyer bugger I was offred aufrrered a tidy £1.222 567 sum which I am sure you will agree is a usefull nest egg some £7xx xx6 92p was invested in a hoiuse in Northumberland with carefully adapted library was turned into a snooker room, now my Brother is or should I say was a briliant snooker player and I do not exaggerate when I say he was as good as MR INTERESTING Steve Davis he went to Newcastle when there was a snooker tournament on and a few famous players of old were giving exibitions and he played a couple of shots with the ultra quick Tony Drago who was impressed, Drago went on to beat Davis so ther you have a little aside the skills my Bro had have gone I will post this now
Me a ging ad if you are having any of he multiple side and my Brother
Yes we do look like twins but he is 2yr older.
I had to fire off the last post ,, its a case of post it or youve lost it or Loast it anyways the reason I am poasting his post is to enknowledgeate myself, with FEDS full backing as to how you are managing with DD are you having the multiple side effects as I am err hmmp err my Bro is having also too as well or not wwhatever your predicamentability My sincerreable goodly wishmasterfullofhappy to you and yourze
Hello wise one, I have been using my head ?? as a counterbalance for some time now, I find the trick works when getting dressed or undressed as ny posture goes into stoop mode when this form of activity is attempted its so frustrating when my posture control bu@@??s up as everything I do is worsened %110 so I put 2plus 2 together and found that if I keep upright when problems occur I can function ,the Duodopa is stil working though not as effective and the shutdowns are horrific and worse they are unpredictable and no warning signs, I can be chatting away no probs then bang end of,, well anything I was attempting really, a quick stab at the boost button and 1/2 hr later Im up to speed again but and its A BIG BUT I am only allowed 3 booosts per day in a emergency per day, 4 but nearly every day its a emergency now my friend so as I inject more gel I am becoming tolerant of my drug and then I need more for the same effect and so on and so on, oh what fun we have.