Good morning
Does anyone have any experience in using the Duodopa pump system,good or bad?
I am two weeks post surgery and as yet have not seen any great changes.
A
I have not had Duodopa installed, but I am very interested in how you have been able to get the treatment. My understanding is that Duodopa costs an absolute fortune and the NHS (in the UK) are reluctant to finance it.
I am puzzled why you have not seen much change in your symptoms.
Peter.
Hello, yes Duodopa costs a lot not just to fit but the constant supply of gell packs is also very expensive, but the difference it made to my life was astonishing,and a lot of other medicines which I used to take I no longer need, it is not a cure but is life changing.
FED
Keep in touch with your Dd nurse as your pump may need fine tuning it took about 6 or 7 weeks before I settled with it
Hope all goes well
FED
Are you being offered Ddopa Martini, and are you feeling any benefits yet Annelouise
FED