I'm at a loss to understand how and when things change over the years with the medication. When I was told I had PD, things were very slowly changing - I would see the consutlant six monthly and he would gradually change things round for me to help me.
It all escalated in recent years and I went into hospital for a week to be monitored. At the end of the week, the consultant suggested certain changes and increases to make and give it some time to see if the changes have helped.
My next app was when I saw the doctor who had a specialist interest in DBS which freaked me somewhat followed by another app 2 months later with the consultant who apologised about his junior doctor and said I should carry on with my regime and left me with another app in six months time.
So I'm left with taking all these pills and still gettting 'off' during the day and not being able to keep still most of the day.
I know I could phone the PD Nurse Specialist and she will have a word with the doctor but she is a very busy lady with a very big caseload and the doctor will give the message back to me to change this or that but I still feel bad, especially when I can hardly walk and "see to myself". Finally, the 6 months come around, My husband takes me to the hospital, we see the doctor who tells me how well I'm doing, tells me to make a small change because I'm on such high doses of everything he doesn't want to give me anything else and gives me another app for six months time.
So we go on but that's life!!!!