Hi everybody - I've posted before and had useful responses so I'm posting now in the hope that my problems may hit a responsive chord in others.
I am now 70 and was diagnosed with p.d. at 59. My main problem is dyskinesia - it's driving me mad! There seems to be no way of getting relief. I dont mean a 'shake' but 'wriithing', continual moving of the arms, head and upper body.
The main medication I have taken for the last 4 years is Stalevo 125 which I take 5 times - at approx. 0700, 1000,1300, 1600 and 1900. If I lower the dose to one or more Stalevo 100 (in place of the Stalevo 125) then sometimes I 'freeze'.
I also take Requip XL (Ropinirole) and I've got this down to 6 mg with the 0700 Stalevo dose and 4 mg with the 1900 Stalevo dose.
In France recently I consulted a specialist who was horrified by the idea of taking Requip and Stalevo together. However my own specialist who, bless him, is a specialist in neurology but not pd, says it's not clear if my writhing is a reaction to the drugs or the disease.
Apart from the constant movement I am in reasonable shape,can still walk on a treadmill for 30 mins.
However, this movement is ruining my quality of life and I would love to hear from anyone else who's faced this problem.