Dystonia & Meds


#1

Hi all,

I’m holding off starting meds for as long as I can. I do get stiffness and Dystonia which is manageable, seems to me that going full on with Parkinsons med’s is using a sledge hammer to crack a nut. I’m determined to stay off them until tremor is too severe.

Does the dystonia cause permanent damage? My right foot feels like it’s twisting in, if I don’t take the meds will it get worse and permanently twist and will the meds stop this from happening?

Thanks for any advice or opinions.


#2

Hi there JonJoe,

We’re sure that other forum members will chip in, but from our point of view, we’d always recommend discussing such matters with your doctor/nurse. In addition, our friendly helpline advisors are on hand via 0808 800 0303 (Monday-Friday: 9am-7pm, Saturday: 10am-2pm)

All the best
Tom A, Parkinson’s UK Moderation Team.