Dystonia of the wrist/hand

Living with Parkinson's Young Onset Parkinson's
1

Hi I was newly diagnosed at 34 with yopd in March this year. For the last month or two my hand/wrist has been curling inwards and I wondered if that is what dystonia presents as? Just unsure whether or not to mention it to the nurses as I’ve also had worsening of tremor the last few weeks. Thanks in advance

2

Hi Jezkyle,

We would recommend relaying any and all changes to your medical team as soon as possible. For more info on distonia, have a look at this page of our website. Muscle cramps and dystonia | Parkinson's UK.

As a reminder, it is very easy to search terms on the site, and if you’d prefer to speak to someone over the phone you are encouraged to call our free and confidential helpline on 0808 800 0303.

All the best,

Jason
Forum Moderator

3

Hi Jezkyle, I have dystonia of the wrist/hand and it is a real problem for me. I’ve had it for about 5 years and I can’t use my hand. This is a major problem because i have difficulty using hand rails, so going upstairs and using my walker and cutting up my food are just a few things that have a major influence on my life. I’m now having problems with my my other hand and need to exercise that or I’ll be in a difficult position!

My advice would be to get it checked as soon as possible!

4

Hi Jezkyle,
I too have dystonia in my left side causing my hand to turn in at rest. It’s been getting gradually worse over the last 4/5 years and I always assumed it was because I was ‘shielding’ my weaker side in some way. Neurologist confirmed it as Dystonia just this week.

I’m not on any medication yet (diagnosed in Jan) but I hear physio is a great help for it. Might be worth trying?