Hi everyone, I have been told I have Dystonia, severe cramps in lower back legs and feet mainly, is there more symptoms to look out for? seeing my specialist october.
Hi Just-a-old-guy,
Thank you for getting in touch. You may find the information this page helpful for more information alongside a whole host of information on our website: Muscle cramps and dystonia | Parkinson's UK.
We also have a free, confidential helpline on 0808 800 0303. Our specialists will be happy to answer any questions you have, offer advice as you navigate this process and signpost you to other relevant support that may help you. The helpline is open Monday to Friday, 9am to 6pm and 10am to 1pm on Saturday.
We hope this is useful. Please take care and reach out if there is anything we can do.
All the best,
Parkinson’s UK Moderation Team 
thanks for the info, will look at it..
Dystonia can also cause muscle stiffness, twisting or unusual postures, tremors and spasms, sometimes worse with stress or tiredness. Keeping a note of your symptoms and triggers could be useful for your specialist appointment.
Thanks Semione, definitely tiredness even after a full nights sleep, my body does not handle stress at all well.
Yeah, tracking triggers is huge. For me, stress and fatigue definitely make the spasms way worse, so keeping a quick note on your phone when they act up makes a big difference when you finally talk to the specialist. Hope the appointment goes well!