My hubby was 45 yesterday, he was diagnosed in Feb last year and his main symptom has always been neck, arm and shoulder pain, he has had this symptom for over 5 years. 2 years ago we noticed a slight rest tremor in his arm and this has developed, sometimes more noticeable than others, especially when he is stressed. He had to inform his employer and the DVLA, as driving is part of his duties, the outcome is that he has a 3 year licence and his employer is most supportive but Parkinsons does fall within the scope of the DDA so employers have a duty to support and not discriminate. His insurance doesn't cost anymore.
Over the last year his motor symptoms haven't changed really but he has been introduced to Sinemet and this does help with symptoms. Do you have any meds? this should help with balance etc. My OH suffers mainly with fatigue, he feels very tired but doesn't sleep at all well, as you have said this changes greatly from day to day and some days he is fine and without warning he can feel terrible the next day. We are trying to use diet and vitamins to help I.e limited diary products and reduced protein, will keep you posted.
My hubby has recently been given a Parkinsons nurse (we had to ask the GP) and he has seen her once and she stressed how important it was to not over think things or worry about the future as no one person has the same outcome and stress does lead to a worsening state. She told us that she has clients who have had this condition and they have kept positive, kept active with exercise and they are still doing most things that they did when diagnosed.
When he was initially diagnosed we were so worried and he does have bad days but he has a lot of good ones and we are gradually getting used to this and life goes on much as it did before he got an official diagnosis. He still plays golf and our long term friends have been very supportive.