Early onset


#1

I have recently been dx with early onset of Parkinson so i am still coming to terms with it although my mother had it so i knew what the signs where or at least some of them.
The thing i cannot get my head round is i only have tremors in left side my hand and left leg i don't seem to sleep to well. But otherwise keep my chin up is there anyone else that has similar symptoms.I am 63yrs old and try and keep myself active with my job would love to hear back from anyone with similar.Oh and I am very new to this so excuse me.

 


#2

 

Welcome mrfrogg to the forum, I was DX 6 years ago and also have the dreaded parky down the left side, namely arm and leg tremors. The meds, Ropinirole, have eased them to a certain extent but do not go away all together. You already have the insight of this unforgivable disease, they say it is hereditary but mine is'nt. We have no recollection of anyone in the past having any sign of it. There are other symptoms also that come with PD that is the balance problems, sleeplessness, aching muscles etc., but we are all different and have different symptoms from one another. But any advice or info you need you will get a lot of input from everyone on the forum.

So keep posting and all the best - Sheffy


#3

the meds we take can cause poor sleep i am on sleepers and am lucky if i get 6hrs per night, 

my parky side is my left which has a tremor and weakness in my left legs therefor i have to us a walking stick i was dx at 47 now am 50.

no known cases in my family hence idiopathic ( means they do not know why ) Parkinson's.

I recommend you learn as much as you can handle you will find this is a mental and physical fight so learning about it can help you deal with it day to day, and most of all listen to your body if it is telling you rest then that is what you need.

Best wishes and good luck BB


#4

One of the features which distinguishes Parmkinsons from diseases with similar symptoms if that it usually starts on one side of the body.

 

Parkinsons  is not regarded as a hereditary disease   The vast majority of PWP’s have idiopathic Parkinsons. i.e. Of no known case.  There is an Italian family who have a genetic defect related  to  to  Parkinsons disease but not everyone in that family goes on  to develop the disease.  They are useful to researchers because they can look for what it is in the makep-up of the PD free members  which is protecting  them from developing the disease .Parkinsons  is not regardd as a hereditary disease   The vast majority of PWP’s have idiopathic Parkinsons. i.e. Of no known cause.

Parkinsons  is not regardd as a hereditary disease   The vast majority of PWP’s have idiopathic Parkinsons. i.e. Of no known case.  There is an Italian family who have a genetic defect related  to  to  Parkinsons disease but not everyone in that family goes on  to develop the disease.  They are useful to researchers because they can look for what it is in the makep-up of the PD free members  which is protecting  them from developing the disease .

 


#5

hello mrfrogg. im pretty new here too. dx may 2015 .. so far im finding the hardest part of it all... is dealing with it upstairs , im the sort of person who likes to put things away and move on, but the truth im finding is take each day /week as it comes , which is blinkin frustrating i know! expecting bad and good days makes it slightly easier to put up with .. keep that chin up . cheers


#6

First post on this forum.

Came as a shock when I was dx with Akinetic Rigid Syndrome (PD) in Jan 2016. The dx is still slowly sinking in and the Consultant Neurologist informed me that at this stage I have very mild symptoms. I'm obviously concerned as to when, the symptoms are likely to deteriorate!! Scheduled for a CT Brain Scan next week, and my first Appt with the local PD Nurse Specialist in Apr 16. By choice, I'm not on any medication yet.

Left arm and leg are less mobile and flexible than my right side. I have always tried to be positive with any brick walls I come up against in life, but I will strive to stay focused and positive of how I will cope when the symptoms eventually get worse. I'm also 7 months post left total hip replacement and I'm a little confused whether the stiffness,ache and discomfort in the left leg (around the hip area) is attributable to the Hip Op or PD. Any feedback from this excellent website/forum will be greatly appreciated.


#7

One matter I forgot to include in my first post was that the PD symptoms appeared to start after taking a short course (1 month) of Metocloprimide. Has anyone else had this experience?


#8

Not exactly the same experience but related..  Metacloprimide is dopamine receptor antagonist which suppresses dopamine and should not be taken if you know you have PD.   You lose 60% to 80% of your own dopamine  before obvious symptoms of PD show up. A few years before diagnosis with PD,  I had two episodes of going into a sort of deep sleep having taken metaclopramide (aka Maxolin).  When I woke up after several hours and went to the chemist the second time I said It was  just as if I had taken Maxolon to which the reply was that it was the same medication.)
.  I knew at the time that it was highly significant of something or other and a few years   later I know what.  I know of one other lady who had the same experience before dx with PD.   Researchers are  are looking for early markers of PD but if there is only treatment for the symptoms, what is the advantage for the individual knowing any sooner than one has to?  


#9

Hi I was dx at age 47 in all probability had started about about 18 months before then shoulder surgery to my left was preformed and bingo first noticeable symptom left arm tremor & found stress made it a whole lot worse.

In some respects I am lucky my dx only took three months and in my view PD is lesser of three evils 

1 Brain Tumour ( result could have died)

Essential Tremor ( they know even less about this that they do about PD )

Parkinson's ( Not terminal but will get worse )

It is a battle I fight every single day BUT I will not let it win all the time I can fight it, you will just have to get on with it there is a life before PD and life after PD I consider it a type of bereavement, make sure you are seen every 6 months by your medical team and if there is any problems with your pd in between review's phone your neuro's sec and asked for a med review weather you are on med's or not.

I believe the longer you hold of on meds the harder they have to work when you then start to take them.

 

Regards BB and good luck.

  


#10

Many thanks for the replies sorry it has taken this long to get back the replies posted found helpful.Talking to my next door neighbour and he put down his sleepless nights to old age i said it was a combination of both yes i have good days and bad but always try and remain positive,i will keep on taking meds,have recently spoken to an advisor who is putting me in touch with PD nurse should have been referred when first diagnosed will let you know how i get on...


                                                            mrfrogg

 

 

 


#11

Welcome mrfrogg

just to say hello I am a bit like you left side worst but legs are my biggest problem . Your pk nurse is the main one to communicate with as nuero docs are invisible for at least 3 month. Ata time!! 

Good luck Ian