Good evening everyone. I’m a healthy 69 year old. I have just been given an appointment at The Royal Sussex Hospital in Brighton in 19 days time for EMG/NCS tests in their NEUROPHYSIOLOGY department.
6 months ago I had a positive DATscan that showed I have Parkinsonism & probably Atypical Parkinson’s [PSP]. About a month ago I was also diagnosed with Peripheral Neuropathy & given Amitriptyline pills which have worked really well. My legs were mostly numb & the leg muscles are still tight. I have taken Madopar & Ropinirole but have stopped taking both & am now on nothing for Parkinson’s.
After the positive DATscan the EMG/NCS tests appointment was set in motion. Since the appointment was made I had a very bad leg “freezing” attack where I could hardly move & my body felt extremely strange. So I was admitted into hospital, where I was for 2 days. Loads of blood test were done & everything was fine [I think they thought I might have had a stroke, which I hadn’t].
Until this freezing episode I would say that my Parkinson’s symptoms were extremely mild compared to most people here.
My walking is my biggest issue. I reckon on a good day I can walk 50 yards before a sit down. I never now go for walks as my leg muscles are uncomfortable & it’s no fun.
Apart from walking difficulty I suffer with fatigue & some sleepless nights. Slight hand shakes when I eat. Also maybe a lack of motivation to do jobs I should do, but I’m quite lazy so who knows. I also cannot stand still because I will freeze & getting up from a chair takes a good few minutes.
But for the positive DATscan I would very much doubt that I have Parkinson’s. But my Neurologist tells me the results were very clear & showed Parkinson’s. My thought is that a positive DATscan shows Peripheral Neuropathy which I know
It will be interesting to see if these tests on the good old NHS give more of a clue as to what I am suffering from.
Anyone have similar experiences?
Thanks for reading