Ever get the feeling your the last too know?


#1

 

hi ya

On july 22nd i went for a 'dat scan', the chap carrying out the scan said a couple of things, firstly 'your result's will be analysed and with your consultant the next day' and 'you should make a emergency appointment with your consultant'

I brushed that off as wishful thinking, the nhs doesn't work that fast !!.

It took me quite a while too get a appointment for the results having been given the run around by various nhs contacts, i eventually got a appointment for october the 1st.

The other day my eyes being dry and inflamed i made a appointment at my gp surgery.

I started off telling the locum i saw about my eyes and that it was on top of all the other problems i have had in the past year and that they were under investigation with a Neurologist.

the locum then told me 'yes your eye problems are linked to your parkinsons', 'your neuro will go through them all with you and change your medication's on oct 1st'.

I told him i haven't actually been diagnosed yet!!.

My Fist thoughts were i think you've jumped the gun a bit, but i dismissed what he was saying as only my Neuro should tell me that i have Parkinsons. the appointment ended and i got some cream for my eyes and eye drops.

This morning the Post arrived and there was a appointment letter for a assessment  with A-tos on monday 6th of october, just a few days after my appointment with the Neuro.

All a coincidence?? or After a year i finally have a diagnosis?? and suddenly a assessment!!

And i am the last too know??.

The man doing the Dat scan could see what was going on with the scan.. I couldn't.

The locum Read my notes prior too my appointment... i couldn't

And no doubt the DWP has access and communicates with the NHS.

I bet i am in for the same Disgraceful treatment others have received  on the forum, and reported in the press from A-tos and the DWP post assessment.

 

 


#2

Hi sea angler

I can see that you have cause for complaint and I sympathise, at the same time I am amazed at the level of communication between the professionals looking after you! I get so fed up with the amount of message carrying I have to do. i find it difficult to go to an appointment with a doctor and start telling them what to do based on what another doc has said and they have not been told about.


#3

 

It would be great if all doctors were up too speed, but it is rare in my past experience.

As for the DWP and A tos I Can't help but feel there is a nasty agenda waiting for me i what could be just days after diagnosis, i fear a tos will just dismiss my illness as that is what they are paid too do.