It's a while since I've posted on the forum, but need help.
Over the last two months things have got steadily worse, particularly with akynesia (freezing) and facial Dystonia.
I now have to consider buying special equipment such as as a lift up chair and some sort of special bed. Plus rails and any other devices that ease the problems associated with movement from a static position. For example getting back into bed after going to toilet. The other night it took me about 15 minutes to get back into bed. Like most 77 year olds I have to go at least twice during the night. When I first go to bed my wife will help. Also getting in and out of a chair is problematic, sometimes I use massive amounts of energy in these normally simple and automatic tasks. I have very mild atrial fibrillation and this is definitely getting worse, particularly after staring to get up or getting into bed. I perhaps should exercise more. Ido have a static bike, languishing in the shed.
What is the best procedure to get help with this problem and get assessment? Is it very much a local thing as to the level of help in this quarter. Is our area of East Anglia good for this SA?
The freezing is much worse during switch-off periods, which are now getting more severe and frequent.
The facial Distonia drives me potty and it's now starting to distort my face, which is affecting my ravishing good looks. I'm beginning to know why you sometimes get so angry BB. I realise that all the aids in the world won't help this.
I'm seeing my Neurologist next week. After a long wait. I'm torn between what she may say and what the PD specialist recommends. Often their advice differs.