Hi, I have an appointment with a PD nurse in mid-December, but I’m mulling over whether I should call the doc before then to discuss my medication and wondered if anyone had any similar experiences or general thoughts.
I’m on Rasagiline, 1mg, Sinemet Plus, 25/100mg, 4x per day, currently at 9am, 12.30pm, 4.15pm and 7.45pm and Half Sinemet CR 25/100 at night (I take this at bedtime, which is around 9.30pm-10pm).
The CR was introduced after my last visit to the nurse six months ago as my biggest problem was (and is) insomnia and she thought the CR might help – I don’t seem to have as much difficulty sleeping when there’s Sinemet in my system. This may be because with Sinemet I find it easier to get into a comfortable position for sleep, rather than it actually helping me to sleep if you see what I mean.
To an extent, this has worked as I now rarely have trouble actually getting to sleep. The problem is that I wake up at 3am or even 2am – I’m assuming that’s because the Sinemet has worn off – and I can’t get back off again.
I have found that if I take half of a Sinemet Plus tablet when I wake up at 2-3am, I can usually go back to sleep. Only for an hour or two, but that’s better than nothing. I found that if I then take another half a pill I can get back to sleep again for an hour or two.
Now, I tried the extra half pill trick before my last nurse appointment and I mentioned this to the nurse, expecting to get a telling off. But all she said was that she couldn’t comment as she wasn’t a prescribing nurse, but she did say that she would recommend the CR but she’d have to run it by someone else. Presumably she did as I got the CR prescription, but I never had any comment/warning about the extra half a pill).
I think I may need an increased dosage/frequency with the Sinemet as it does seem to be wearing off between doses. I’ve been aiming for every 3.5hrs, but I think maybe 2.5hrs would be better, although I’d obviously need more pills to make it through the day.
I have to say that, while Sinemet can sometimes be slow to kick in, it usually does so within half an hour, or even 20mins and it works well, in that I have a good range of movement and dexterity, which I lose without it.
Sorry to drone on, so I’ll shut up for now. Any observations much appreciated and thank you very much in advance.