Eyes closing most of the day

Hi there all.

… I have brought this subject up once before on here and only one other person said that they have had the same. My neurologist has confirmed with me that It is to do with my parkinsons and recommended that I got Botox. I got this done at the Queen Elizabeth Hospital in Glasgow and it did make a bit

Of a difference.

Then this year Covid struck and all the clinics in the hospital were closed
My eyes have been getting steadily worse and for most of the day my eyes are closed
Which is very scary especially when I have fallen down the stairs aBout 5 times and have had to go to hospital.

I now have an appt through for 6th Nov to get my Botox done…

I would like to hear from anyone else who suffers from this. Thank babs

Hi Babs, still having problems with your eyes then, I must admit that I have not come across anyone with parkinsons that has this problem, you would have thought that by now that you would have heard from others who suffer with this if it is a common part of parky. I’m no expert but doubt it is anything to do with parkinsons, we have nigh on 40-50 members in our group, and no one has this problem. I’ve never even come across it being listed as one of the problems of parky. I’ll ask around and see if anything comes to light with anyone. In the mean hope your appointment goes well
sheffy xx

I also have my eyes closing and get botox injections which certainly have helped,it is definitelyto do with parkinsons if i remember correctly it is mentioned in

Hi i also

Hi ,
I al so have eye problems and botox injections which certainly have helped.
It is definitely to do with parkinsons and is mentioned in leaflet about eye problems.
HOPING this info helps,
Cheers AnneD

Blepharospasm is very disabling. Because of course when your eyes close you can’t see. Had a close shave the other daY WITH A CAR WHEN I was riding my trike in the road. I don’t want to be a nuisance to people by riding on the paVEMENT but I just can’t keep my eyes open. It’s worse in bright sunlight. Usually wear sunglaSSES OUTDOORS. Can be pretty uncomfortable when the muscles are very tight.

My gp thought it was a stress symptom and it wAS A COUPLE oF YEARS before I started finding out from a dystonia bulletin board that movement disorders could be caused and worsened by drugs.

Oct/Nov. 2001 single dose Domperidone for vomiting with migraine
Feb, 2002 onset of blepharospasm
15 May 2002 SertraLINE 13 days
27 May 2002 Amitriptyline 2 days
Muscle spasms spread to rest of face, neck, shoulders, arm. First signs of akathisia and parkinsonism.

December 2002 Specialist made it worse again by giving me Sulpiride, a neuroleptic.

And I was repeatedly given antidepressants which kept making my symptoms worse. Vicious cycle. I was told nothing about drug-induced movement disorders. Akathisia is often misdiagnosed as anxiety/depression. So instead of being warned & informed they throw more drugs at you until the damage is irreversible

Blepharospasm: a review of 264 patients F GRANDAS, J ELSTON,J N QUINN, C D MARSDEN Journal of Neurology, Neurosurgery, and Psychiatry 1988;51:767-772

In our series, an obvious cause was evident in only 14.3% of patients. These included Parkinson’s disease and other forms of Parkinsonism, neuroleptic-induced tardive dystonia, other drugs including levodopa and nasal decongestants may also precipitate blepharospasm
Chronic severe dystonia after single exposure to antiemetics. M. Walker, A. Samii 2006 The American Journal of Emergency Medicine, Vol.24, Issue 1, Pages 125-127

Dystonia is characterized by involuntary sustained muscle contractions that are repetitive and involve abnormal postures.

When laryngeal muscles are involved, ensuing airway compromise is life-threatening. Drug-induced dystonic reactions after administration of medications in the emergency setting are not uncommon; however, most are reversible. We present the case of a patient who experienced permanent dystonia after receiving a single dose of an antiemetic medication.

Approximately 5 years ago, a 41-year old woman complaining of nausea secondary to a mild gastrointestinal tract infection presented to an outside ED and was treated with Droperidol. Within minutes, she experience anxiety and abnormal involuntary movements of the neck and lower face that did not respond to benztropine or diphenhydramine.

Further history reveals that, over her adult life, she had experience brief reversible dystonic reactions after
treatment of various self-limited conditions with phenothiazine…

SSRI-Induced extrapyramidal side-effects and akathisia: implications for treatment Roger M. Lane Lane Journal of Psychopharmacology, Vol. 12, No. 2, 192-214 (1998)

The selective serotonin reuptake inhibitors (SSRIs) may occasionally induce extrapyramidal side-effects (EPS) and/or akathisia. This maybe a consequence of serotonergically-mediated inhibition of the dopaminergic system.

Manifestations of these effects in patients may depend on predisposing factors such as the presence of psychomotor disturbance, a previous history of drug-induced akathisia and/or EPS, concurrent antidopaminergic and/or serotonergic therapy, recent monoamine oxidase inhibitor discontinuation, comorbid Parkinson’s disease and possibly deficient cytochrome P450 (CYP) isoenzyme status.
. …Furthermore, early recognition and appropriate management of EPS and/or akathisia is required to prevent the impact of these effects on patient compliance and subjective well-being.

Drug-induced movement disorders Stephen R Duma, and Victor SC Fung, Aust Prescr. 2019 Apr; 42(2): 56–61.

Thanks Anne you are right

Babs x x x hope this finds you well

Hi Babs
I have what I think is something very similar. For the last few months I have experienced very heavy eyelids, even when I’m not tired. I’m convinced it’s a Parkie’s thing. I find that they are worse in the mornings and as with my other Parkie’s symptoms it comes and goes.
It feels like the muscles around my eyes just cannot hold my eyelids up and I have to concentrate really hard to keep my eyes open so I can see what I am doing. So even though it doesn’t hurt me I do find it incredibly frustrating when it’s happening.
Haven’t mentioned it to a consultant yet as haven’t seen one since feb.

Hi babs ,

I posted you a personal message
Cheers. ANNED

Hi @KazzieLou :wave:

Welcome to the forum and thanks for your message. I’m sorry to hear you’re experiencing heavy eyelids, that sounds really difficult and frustrating for you. I would recommend contacting our helpline on 0808 800 0303 or by emailing [email protected]. They are open 9am-7pm Monday to Friday and made up of trained advisers, including Parkinson’s nurses who will be able to offer you information and support so do give them a call if you wish.

Best wishes,

Emily - Moderation Team