… I have brought this subject up once before on here and only one other person said that they have had the same. My neurologist has confirmed with me that It is to do with my parkinsons and recommended that I got Botox. I got this done at the Queen Elizabeth Hospital in Glasgow and it did make a bit
Of a difference.
Then this year Covid struck and all the clinics in the hospital were closed
My eyes have been getting steadily worse and for most of the day my eyes are closed
Which is very scary especially when I have fallen down the stairs aBout 5 times and have had to go to hospital.
I now have an appt through for 6th Nov to get my Botox done…
I would like to hear from anyone else who suffers from this. Thank babs
Hi Babs, still having problems with your eyes then, I must admit that I have not come across anyone with parkinsons that has this problem, you would have thought that by now that you would have heard from others who suffer with this if it is a common part of parky. I’m no expert but doubt it is anything to do with parkinsons, we have nigh on 40-50 members in our group, and no one has this problem. I’ve never even come across it being listed as one of the problems of parky. I’ll ask around and see if anything comes to light with anyone. In the mean hope your appointment goes well
sheffy xx
Hi,
I also have my eyes closing and get botox injections which certainly have helped,it is definitelyto do with parkinsons if i remember correctly it is mentioned in
Hi ,
I al so have eye problems and botox injections which certainly have helped.
It is definitely to do with parkinsons and is mentioned in leaflet about eye problems.
HOPING this info helps,
Cheers AnneD
Hi Babs
I have what I think is something very similar. For the last few months I have experienced very heavy eyelids, even when I’m not tired. I’m convinced it’s a Parkie’s thing. I find that they are worse in the mornings and as with my other Parkie’s symptoms it comes and goes.
It feels like the muscles around my eyes just cannot hold my eyelids up and I have to concentrate really hard to keep my eyes open so I can see what I am doing. So even though it doesn’t hurt me I do find it incredibly frustrating when it’s happening.
Haven’t mentioned it to a consultant yet as haven’t seen one since feb.
Welcome to the forum and thanks for your message. I’m sorry to hear you’re experiencing heavy eyelids, that sounds really difficult and frustrating for you. I would recommend contacting our helpline on 0808 800 0303 or by emailing [email protected]. They are open 9am-7pm Monday to Friday and made up of trained advisers, including Parkinson’s nurses who will be able to offer you information and support so do give them a call if you wish.
