Once we have Parkinson’s we notice the signs others show who probably have the disease. I really probably should not post on this forum. But for me every day I want to learn how others deal with PD. I think the other countries have things to learn from.
In America from talking to others here with PD the time it takes to get a diagnosis might take 5 years or longer. Our regular family doctors seem to have had just a minimal course on Parkinson’s.
Our General Family doctors have to give referral to get to a neural specialist. In my case a chiropractor looked at x rays, watched me walk and pulled on my limbs. Then told me to go see a movement specialist. Then my wife an RN went with me to an app. insisted on seeing a specialist.
Do you feel this problem might be the same in the UK. I look back and wonder if I would of gotten medicine sooner that my daily life would of been better. There would of been activities my wife and I could of done. By the time the medicine prescribed to help my disease. The parkies had progressed too far.
So now as part of my daily life if I know someone well enough and they remind me of the past. I do not hold back to say that their walk has changed, your voice is different, and so on. I don’t say Parkinson’s for I am no doctor. I just hope it points them to insist why.
One of my uncles, and aunt had PD before they passed and a cousin has PD. No one in the family talked about the secret.
We are taught to stay silent. But after reading posts on the forums from people who wonder if they might have Parkinson’s. Is the reason for their post because family doctors for the most part are no more aware that parkinson’s is not a one size fits all. The doctors treat the symptoms never putting the puzzle together.
So in your opinion is it a rude to mention your observation. Or should one remain silent.