My mum has had Parkinsons since 2003. I am interested to hear from anyone who has had Parkinsons or has a family member who has had the disease for this length of time (or more). It is becoming more and more difficult now to determine what symptoms are a result of Parkinsons progression/ low blood pressure/ the medication etc.
My mum (76) regularly faints now (often in the morning) and sometimes several times a day which can be stressful for my dad (78) as he always tries to catch her and prevent a serious injury (she has brittle bones) which break easily.
What advice or tips can you give for this?
Really sorry to hear about your mum. It must be so difficult for your dad too. Have they been able to speak to a specialist about this? Some Parkinson's medications can cause low blood pressure but if this is a sudden change it needs to get checked. It can't be sustainable for them.
If you'd like to talk to us more about it please get in touch on 0808 800 0303.
Yes a possible very d angerous situation here I have been fighting BLACKHEART for 18 yrs and the last5yrs I have had many falls only one was serious enough for a trip in a Ambulance and 3days in dock, "to make sure",it was the combination of PD drugs that was the cause, i cant recall the culprits but madopar was one, after a few days of tweaking, I seemed ok, now I have the Duodopa system and the falls are dyskinesia powered, such inertia is the twisting and twitching especially my legs it caused two prolapsed discs, pain oh yes indeed pain to try and reduce harm we rearranged the furniture so if I fall it lessens the possibility of harm there are drugs to help but they can cause constipation so I cannot take them as the Ddopa system must not be blocked,,(it goes straight to the small intestine by passing thee stomach but talk to your PD Nurse and they wil try other drugs the whole thing with Parky is trial and error
I wish you well my friend
I hope you have found a solution by now...it is a problem that needs professional investigation and advice.
I can only add that my husband suffered this when being changed from DAs to Sinemet and was prescribed Flurocortisone to lift his blood pressure for a couple of months.
This worked well and eventually he didn't need it.
Hope all is well now.
I have had PD "forever, it seems" and had low blood pressure "forever" before that. I still take vitamin E to keep my blood pressure up. Haven't had any trouble "forever"! Ask if it will cooperate with your meds.
This sounds exactly like my Mum - she recently got diagnosed with POTS (Postural Tachycardia Syndrome) and has been prescribed Flurocortisone.
I hope you find a resolution!