Also my index finger on my left hand is now permantly hooked over...has anyone experienced this?
Any advice welcome
Have just had the delight of filling in a tax form (or at leastb my husbnd has on my behalf) - what a nightmre. And we are told to avoid stress!
Once the nuero got my meds on track things improved greatly The first months are the worse
My fingers are not too bad but left thumb has a mind of its own
As K G said hang on in there [::biggrin:
All the best Adrian
I assume by your we can welcome you to the 40s club, there are a lot more of out there than you think.
i have similar problem. starting with my left arm not swing and left feet dragging on the floor this problem start 4 yrs back now associated with lot of difficulties
i am waiting for good day with wonderful medicine comeout.now i am 46
Would be pleased of any feedback....beeny x
Having returned from a consultation with my Neurologist I am smiling as I recall the expression on his face and his words 'the movement is very good,' while he put me through the usual walking and hand co-ordination exercises used to ascertain progression in PD.
More than this, he seemed amazed that, I have not needed the use of thermal underwear as in previous years, my general all round improvements, and accordingly with encouraging words, almost insistent, that I continue with my evening exercise routine I developed towards decompression, alignment and health of the spine.
And finally, while not apparently moved by the mention of the Borage and Coconut oils I take, he noted down the fact that I made no request for medication previously taken to relax the cramps, and I was very pleased when he wrote to prescribe Stalevo at various strengths; to accommodate the fluctuating requirement levels, providing me with the ability to adapt the dose to suit physical need.
While I realise it may not work for everyone, for those interested, the exercises I developed are described here. http://sites.google.com/site/beauxreflets/keep-fit
I was disgnosed 10 yeas ago. I was reluctant to take any medication at all and managed without for three years. I then started Requip - this was ok but I found that the effectiveness and side effects depended on the brand. I now always have one particular brand which is manufactured in Poland. They do sometimes make me feel a bit sick but nothing I can't put up with. Four years ago I started on L dopa and I can honestly say it was like a magic wand. My symptoms were so much improved and have remained stable on the same dose ever since, but I do take Requip as well. I am still on the lowest dose, which is 12.5/50mg so the one you have been started on is the next one up I guess. I do hope you soon start to feel the benefits and begin to get your life back. I certainly have no regrets about starting on l-dopa, in fact I wish I had started sooner. People cant believe I am better now than I was 8 years ago.
Thank you so much for you reassuring msg. I am so glad to hear you are doing so well I have always been a fighter and know I have it in me to make the best I can of this illness but it's so difficult when feeling so ill all the time.Like you I have been reluctant to start on any meds at all and when I did can honestly say I felt worse not better but am hoping now things will get a lot better. I wish you good luck in you own personal fight.
Hi key girl
just getting into this forum and reading this messages from 5 years ago ,
just like you I am weak on the left side and not doing very well at walking , I look like someone that plays a tambourine and getting ready to join in the river dance , how are you doing now? As you got pd before I did hope this message finds you well as we have the same symptoms Ps it's hard not to have stress as if it's not tax there's always something else to wind us up o am 56 dx 1year ago thank god I have a good wife and 2sons
take care all the best