Its been about ten or eleven weeks since a neuro told me I had PD. I was sent for a DAT Scan to confirm this. I was also offered medication which I prefer to put off till the symptoms get too bad. My GP was sent a letter outlining the diagnosis, and confirming that I would be called back for another consultation in two months.
Ten weeks later and I had heard not a word. So I rang the hospital (Hull Royal Infirmary), and was told that although I was indeed meant to have had a second appointment, nothing had been done and my file had been somehow forgotten about. Nor has my GP called me in for further discussions about therapy. In short, I seem to have been left to my own devices, abandoned. Is this normal?
Over a week ago I rang the hospital. Still not a word.
Already depressed and now with the PD diagnosis ~ this is doing me no favours. Is this normal, or should I try and kick up a fuss? I just don't know what to do any more. I have chronic pain from spinal disease, long history of depression, and now PD. Feels like I'm fighting a losing battle.....