Hello. I was diagnosed with Parkinson’s in 2016 Since then I’ve spent a lot of time acting like an ostrich with my head in the sand hoping it will all go away. I try to look after my self and keep healthy etc but I have quite a busy job (that I love) and two grown up children who live close by with their partners and my first grandchild (now 7 months). I got divorced about 10 years ago and have met a lovely man who lives in Manchester- so we haven’t seen a lot of each other recently apart from first lock down.
My symptoms have been getting worse recently and my Parkinson’s nurse changed my medication. I take rasagaline and ropinerol every morning and I take sinemet at the same time as the other tablets in the morning and then twice more during the day. It used to be just one a day but was recently increased to 1 1/2 and now 2 tablets each time together with a new prolonged release sinen when I go to bed. I’ve also just started hrt.
And now a week into the new tablets I feel dreadful! My tremor is better but I’m all over the place emotionally and my brain is so jumbled im finding it hard to talk. My mouth gets so dry as well. I keep dropping light things such as pencils and pieces of paper and my phone- they just slip out of my hand before I’m even aware of it.
Obviously my sleep hasn’t improved and I’m sitting here crying as I write this feeling incredibly sorry for myself.
I did call and email my Parkinson’s nurse on Thursday but now don’t really expect to hear until Tuesday- my go has also sent them an urgent message to contact me.
Does anybody else ever feel like this - could it be the increase in tablets ? I try to stay positive and I smelt my shampoo today for the first time in ages and I’m focusing on that at the moment. I just hate having Parkinson’s at times like this and feel quite alone even with my lovely family and friends.
Sorry it’s such a miserable post I’m usually much more upbeat but I wanted to hear people’s opinion.
Thank in advance.