In January 2020 I went to my GP as I had a tremor in my left index finger. For years I’ve had a numbness in the right side of my left hand. I get it checked out every now and then and have always been told as it’s not painful it is best left alone. I just thought the tremor was something to do with that. I was supposed to see a neurologist in March. Enter Covid 19 and it was mid November before I saw anyone.
To add to the mix I have a couple of degenerate discs and suffer from sciatica. After seeing me slowly walk in to the room, his first thought was Parkinsons but he was also concerned that tumours were causing the problem. There was a 3-4 months waiting list for MRI scans but he arranged a scan after 12 days.
I found the whole MRI experience traumatic and my stress levels went through the roof when I read a copy the letter the neurologist sent to my GP stating his concerns about tumours before the scan.
Thankfully the brain scan was clear. I received another letter from the neurologist saying that the most likely cause was in fact Parkinsons. He’d arrange for a Parkinsons nurse to send me some leaflets and would see me in 6 months. Of course now we are back in lockdown it could be longer.
I have now received the leaflets and the nurse said he will contact me “in the near future.” Some days I read the information. Other days I cannot face reading another thing. I feel I have been left hanging.