Hello. This is a new avenue for me as i have never used a forum but really need some help. My mother is 70, with Parkinsons and my father is her sole carer. They really need some help but we are struggling to find them some support. Any advice on where i can find some either night time or day time care to give them both the break and quality of life they need. They are Southampton based and we have no family immediately local.
Welcome to the forum.
As someone’s Parkinson’s progresses, they may rely on you or others for more support. However, it’s important to know that support is available for your mum and Dad. We have a lot of useful information on the Parkinson’s UK carers including a guide which looks at issues that may affect your parents. Please visit our website here: https://www.parkinsons.org.uk/information-and-support/caring-someone-parkinsons
The offers practical help and advice, whether you provide care and support for someone who has recently been diagnosed, or someone who has been living with Parkinson’s for a while. You can download the guide here: https://www.parkinsons.org.uk/sites/default/files/2018-09/B071%20The%20carer’s%20guide%20WEB.pdf
Our helpline and Parkinson’s local advisers are here to answer any questions you have diagnosis and life with Parkinson’s. Call us on 0808 800 0303 or email us at [email protected].
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Hello, Please do follow up on some of Reah’s references, I am sure you will find a lot of useful information. I have taken the liberty of doing a quick search and this came up re Parkinson’s in the Southampton area.
If they haven’t already done so, I would encourage your parents to seek assessment by the Adult Care Services in Southampton both an assessment for your mother and a carers assessment for your father as this should give them available options and services. Presumably your mother has some kind of medical contact like a neurologist but if not ask their GP about a referral to a Parkinson’s specialist nurse if there is one - the helpline could probably find this out. Finally it may be worth contacting the local citizens advice to find out what support might be available to them that is not necessarily Parkinson’s specific. I hope that somewhere amongst all these suggestions your parents will find the support they need. I send my best wishes and good luck to you all
If the advice you have already received does not meet your wishes - Try Age UK. I recently had to search around for someone to assist my wife and I. Age UK provided me with a very comprehensive list of individuals offering every kind of service from simply Cleaning through to the provision of meals, Companionship and up to 24 hour care. I have since employed a most efficient lady to assist us and another source providing Meals-on-Wheels.
Thank you Reah. I am aware of the guide and other useful documents you have. I am hitting a blank wall though on where to eve start looking for the care my parents desperately need. I’m after some guidance, tips, anything on even how to begin finding what we need.
No problem. In that case, I would definitely recommend that you give our helpline a call a speak to one of our advisers about this, they’ll be able to give you more guidance on this.
Thank you Gerrard, that sounds a positive avenue to look at. I am pleased to hear there are solutions out there.
Hello Tot. Thank you so much for your advice. Yes my mum has a neurologist consultant, but only gets an appointment once a year (!) next one is September 2021
I have taken the advice regarding the GP and will try to arrange an appointment for my Mum that I can also attend with.
They have previously had a care assessment but that was some years ago so I think it is worth looking at this again.
Thank you for your suggestions, I feel better that I can now start moving forward a little.