Hello, We have found ourselves trying to find a care home with nursing care for our loved one who can no longer safely stay at home due to progressing care needs. He has been in and out of hospital since February and is currently in his second step down bed (the first setting having said they couldn’t meet his needs.) He has now been diagnosed with Parkinson’s dementia and his mobility is greatly diminished following the prolonged hospital stays. The greatest problem is he is a bit uninhibited and falls over most days. We have been advised by the current setting that they can’t meet his needs long term and that we should look for a setting that offers specialist Parkinson’s provision or a smaller setting. We are now worried about how we are going to find the right place. Do such specialist settings exist? None of my online searches have yielded any fruit. I don’t want him to end up in yet another setting that decides they can’t meet his needs. Any advice would be greatly appreciated
Hi dkn,
Thank you for sharing this, we’re so sorry to hear you’ve been struggling to find the right place for your loved one.
We’re sure our lovely forum members will share their experiences soon but in the meantime you may find some of the information on this page helpful: Home care and care homes | Parkinson's UK
Please know we’re here for you and if you would like to talk to someone do reach out to our helpline. It’s free, confidential and our advisers can offer a listening ear and support when needed: 0808 800 0303
All the best,
The Parkinson’s UK Moderation Team
I would ring your local authority’s Adult Care people, who should be able to give you a list of places that are set up to cope with these issues. But they won’t tell you which homes are good or not so good.
After that, like most things these days it pays to be crafty. The GP might be prepared to say in their opinion which home would be good. I asked a specialist nurse who had good experience of all the local ones: I read out my own carefully prepared list and she said yes or no, sometimes with emphasis!
I’d also say - when you have a shortlist to consider, just turn up and ask to have a look around. Don’t make an appointment.