Finding it difficult now the honeymoon period is over


#1
I don't get depressed but i do become bored not being able to leap around as i could seven years since.
i've managed to get myself referred to a different consultant and that has buckeed me up a bit - new hospital new staff new hope an all that.
I notice while cruisin the forum that a wider variety of drugs are being used than i've been used to hearing aboutin these parts - guess the yonng and the lucky have preference?
I'm not sour, just bored, bored bored. my problem is that I cannot concentrate to read and my hands are too shaky to draw paint or write. Tv has no allure for me.
no. that's not my big problem.
i suffer as i am beginning to suffer now from chest spasms which bend me up and hamper my breathing and don't clear until i stretch out on the floor for half an hour. Any one out there suffer the same? is it only me? these spasms attack me most while silver surfing - because i'm bored.
My fingers and my mouse don't get on together. Luckily i have a way out terrific partner/wife we are off on a short bus holiday soon - any advice for sitting on a coach for hours?


Scribbler

#2
Hi Scribbler. Seems you are having a pretty tough time. First I suggest you you see your Parkinson's nurse (if you have one) or your neurologist to see if your medication could be adjusted to better effect. Make a list of your symptoms and how they vary from day to day.
As for the boredom, I can only say that this is entirely up to you to put right. I presume you are now retired. A life without work can take some getting used to (it did with me) and you have to find new and pastimes. If you have a caring and supportive wife, that's a big bonus. She could perhaps help you to socialise more and make new friends. Above all don't bottle things up. Talk about them.
Good luck!

#3
no all about the bordem used to have own business very busy one now hands and well most of bod dosnt want to work the way it did i still get out when i dont feel down in the dumps or to shaky maybe we should be come cocktail waiters or somethin i try to make a joke of it sometimes as used to love a good laff the only thing is my old mates find it ok to have a laff at my exspence teese days any ways im waffalin try to keep positive im 45 dignosed at 35 still keepin hope for cure never give up x

#4
Hello Scribbler
LIke you I'm bored out of my mind. My granddaughter lent me her Nintendo DSi and I've found that I can manage it and so play games on it now. ALso, I have a Voice Recognition programme for the computer as my fingers and mouse seem to hate each other! I use Dragon Naturally Speaking - I speak and it types for me. I am currently trying to write short stories about my life from childhood and this keeps my mind enterained for some part of the day.

I hope you find something which stimulates you.

Jennyb