Hello, well, where to start.
I am 71 and already have Lupus (SLE), but was diagnosed with Parkinson’s as an addition to that this week. I also have Sjögrens Syndrome which often comes with lupus. My GP said it’s quite rare to have both lupus and Parkinson’s. I didn’t expect the diagnosis and felt that all my symptoms were due to having lupus.
I have had a number of falls in recent years and broke my upper humerus about a year ago. That led the doctors to send me to neurology which eventually led them to my latest diagnosis.
I am a positive person and have taken the view that nothing has changed, I just have a new label and my husband and I can deal with issues as they arrive. Having given me the diagnosis this week, my GP sent us off to think and absorb the situation and return next week to discuss the way forward. At this point I have no idea what medication I will be given or how that will react with the medication I’m already on for my lupus. I’m trying to remain chilled about it or my lupus will flare up. I’m just reading lots of stuff and having a good look at other people’s stories on this forum. I will be interested to hear from others what is likely to happen re treatment so that I can prepare myself for dealing with this new challenge.
Love Sylvia x