Does anyone else get problems getting doctors, nurses ,physios and OTS etc. to understand that Parkinson’s fluctuates?
There has been a huge number of times when medical staff who have limited knowledge of Parkinson’s have been to assess my husband and assumed that the way he is when they see him is the way he is all the time.
The trouble with people not understanding means there is conflicting advice as to how to deal with his symptoms.
It’s an understatement to say how fed up and frustrated we are that this keeps happening.
When he deals with specialists in Parkinson’s they mostly seem to understand how variable Parkinson’s is, but generalised medical staff do not understand at all.
Has anyone come up with a solution to get medical staff to understand because for years we seem to be going round in circles?