My right foot swells everyday, and gives me hell with pain, starting when I get about of bed and whenever I walk.
I've spoken to the Docs about the swelling and they say it is down to meds, but we haven't discussed the pain as yet.
No problems with shape/distortion or anything else with foot, but I am concerned about the pain so will see doc asap.
Perhaps you should do so also - just for peace of mind.
I have dystonia in my left foot, toes curled, a pigeon toed walk, at bad times it turns over a bit sso that I walk on the outside edge of my foot, then I get a cramping pain and my foot goes into a sort of claw shape.
The early morning pain you mention is something that I find wears off very quickly and I suppose is just because of stiffness after inactivity. I get pain on the other side after walking further than usual, I assume because I drop heavily onto my 'good' foot as I walk and it jars through my ankle, knee and hip. Is this the sort of pain you are getting? I've also noticed that the second and third toe on my right foot seem to be sticking together and cramping a little and I am worried the dystonia is coming in that foot as well.
I have a lot of trouble with shoes. My feet just don't stay the same and something that fits in the morning is very painful later in the day.
The best I have at the moment are some converse trainers I got in a sale. Are your made to measures NHS or private? Can I ask how much?
I have been Dx for just over a year and have started getting the symptoms you describe in your foot.
One toe is trying to hide behind the other which can be quite uncomfortable and my whole foot seems to be trying to turn inwards making walking awkward.I also get cramp in both feet.
I take 6mg Requip and am waiting (4 weeks so far) for a letter from the neuro to add rasagiline / seligaline. Hopefully that will help.
I also suffer from painful dystonia. I get it mainly in my left foot and hand, however this last year it's troubling my right foot too. In the mornings I was literally walking on the balls of my feet and my feet would flip over onto their side. I had a chat with my PD Nurse and she suggested taking my first dose of Sinemet an hour earlier and before I get out of bed. This, for now seems to have sorted the problem out. I've also adjusted my daytime regimen and moved my doses of Sinemet back by 30 minutes - this also seems to have helped. Stretching exercises help too. I hold onto the kitchen worktop and slowly rise up onto my toes and slowly back down and rock back onto my heels and slowly forward again, I do this about 5 times, several times throughout the day. It helps to stretch the calf and foot muscles out. For my hand I stretch my fingers out as far as I can several times a day. PD causes the muscles to become short and this can cause a lot of pain - the nerves get trapped and pinched (Neuropathic pain) Ask to be referred for physiotherapy.
Take a look at these info sheets, they offer very good advice
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