I am 73yrs old, diagnosed 3yrs, was getting along fin e until a 6 months ago F.O.G. started hitting me and in the last month it is 24/7, never without it, using walker but still get frozen. Anyone experienced it this bad?
Good afternoon Scotty … I’m 71 & got diagnosed in June 2023 following a positive datscan. My gait freezing occurs if I stand still for a couple of minutes. I also get gait freezing if I sit down on a chair for 10 minutes or so. Once I start walking I am ok although I have to stop due to fatigue after 200 yards. My gait freezing is bad & I often fall over.
Best wishes
Steve2
Hi my hubby was diagnosed 6yrs ago this last 2yrs he freezes constantly & goes rigid. Door ways, change of surfaces, turning. His legs go solid like planks. He’s had physio help with ways to handle it better. Stopping for a minute saying big steps one two three. It does work sometimes but lately it’s getting worse. He finds it very frustrating I also feel frustrated & have learnt patience more than I thought I’d got. I’m afraid it comes with the PD but try physio support. Good luck
An exercise I find good is to support myself between two dining chairs, holding their tops & swing my legs one at a time, also swinging & bending at the knee.
Best of luck
Steve2
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Hi I’m Tommy dx#12 years a slave.
I’m 63 .
I’ve had this freezing of gait no more than three times over the years but fortunately for me I’d read about it in some of the reams of stuff that the likes of us are encouraged not to read on doctor Google.
I also ramble on I bit to get to the point I’m totally aware how annoying that is but hey that’s me.
Anyway what was I talking about oh yes freezing of gait, the article I read explained that if you focused on a mark on the floor you know the edge of flagstone,a crack in the pavement, even a discarded piece of litter and concentrate on the spot and get one foot/ leg moving hey presto your away again.
You know what it actually worked.
However I don’t know what the opposite is called but I know how it feels.
You just keep speeding up to the point you’re in so much pain but you’re brakes don’t work and you physically have to grab a piece of street furniture like a a lamp post in a Gene Kelly fashion to stop, usually resulting in sliding to the floor as joe public simply ignore you assuming you are elephant’s trunk ( that’s slang for being drunk) .
You rest for as long as you need and feel the episode has passed and have another try feeling confident it’s over but it’s not, it starts again and you have to repeat the braking procedure.
Now what is that all about eh ?