You need sympathetic professional help quickly, and possibly some rebalancing of your meds. Is your neuro easy to talk to, or do you have a parkinsons nurse?
So many patients have problems after stays in hospital.
It is not your fault that you are feeling like this but of course not your family's fault either. Have you tried the helpline?
I agree with Mosie: you need t osee your doctor, neuro or PD nurses as soon as possible. I remember my angry moods and boy I don't want to repeat them. A change of meds sorted that out, and I hope will help you, too. i'm told that the anger is frustration at not being able to do things - that may be part of it, but it felt to me like somethng different than just frustration. And certainly, telling myself to "calm down" or "pull yourself together" was no help at all - as Mosie says, it's not your fault, it's chemical unbalances in your brain.
Let us know how you get on - and I hope the family is all feeling better soon.
Thwnk you Mosie , no its very difficult to see my neuro and in the years since diagnosis i have only
Ever seen my pd nurse once. I will try calling her this week but i guarantee I will get the answèr machine. i appreciate your understanding and advice . I just feel so low just now and could run for the hills. I Am also dealing with the suicide of my brother In law and me trying to give him Cpr after he hung himself after battling with depression. My young sister and the kids are in bits and i also feel guilty cause i dont have the strength to help them:( will keep you posted Mosie and again thank you for your reply.
Hello alibali sorry here about your loss have you seen your gp as I was put on amitripyline it's a antidepressant but also helps for pain also sleep might be worth having a talk if you have no luck with pd nurse. also you can ring puk they will help also get back to you with a pd nurse. 24 hrs. gus
I'm wondering how often your regular appointments are with the neuro.? My PD nurse and neuro alternate so I see someone everyone ever six months although it wasn't so sensibly organised. When first dx I did not see the PD nurse for several months after the abrupt dx,by the neuro. After five years there has only just appeared some leaflets where the neuro clinic takes place but I'm pretty sure the neuro did not put them there. I found the PD UK helpline an absolute lifesaver. They have experts in the medical and the work side of things and always get back to,you i.e. repeatedly try and contact you unlike some PD nurses who follow the maxim "if at first you don't succeed, give up".. Many of the PD nurse posts were pump primed by PD UK for at least a year to demonstrate their usefulness and then taken over by the NHS. They wouldn't be best pleased by the way some operate.
Thanks for your advice Gus, can I ask do you know if amitipyline is ok to take with Requip and Sinemet ? Its just i am trying to get an appointment with my GP this week and would like to discuss this with her. Its fine , mate If your not sure as i can always phone puk.
I’m sorry for your loss. The situation around your brother-in-law’s suicide sounds really difficult. If it would be helpful to have someone to talk to (in addition to the forum), there’s a charity called Cruse Bereavement which offers support www.cruse.org.uk
Best wishes to you and your family.
Alethea
Digital Team
First let me congratulate you on your choice of AVATAR, I have been Ali's most loyal fan ,he was and always will be the greatest , it saddens me to see the damage PD has inflicted o him, but he will not give in to this monster attacking our brains, and you sir must follow the great mans example,. When I read your story it was like reading my own, I was turning on those I loved most, my wife has been to hell and back with me and there have been times when I would not have blamed her if she had left me, but she stayed and together we fight on in different bed rooms mind as I still lash out in my sleep and hurt her, so the choice was essential,. I was diagnosed in 99 and given two drugs cabergoline and madopar, the first one was known to accelerate hypersexuality and OCB, and it certainly had that effect on me, I became so depressed as my behavior to all family and friends was unforgivable,so I knew this could not continue and contacted my exellent Nurse Specialist, she altered my drugs, taking away cabrline and the change was immediate Ali, you dont mind me calling you after the greatest I hope,, so my friend the years since 99 have been a constant war, its like chaing your tail, just when you think youve pinned BLACKHEART it avoids your attack and hits again, but I have it off yo a fine art now, also I have Duodopa, its a pump which delivers a steady dose into my small intestine, it is taken off at night an on in the morning, this has heped me so much but I fear I am becoming tolerant of the system as I feel other things ,,staggering unsteady gait has returned,Dyskinesia with a vengence,and very painful Dystonia, add in prostate cancer and you can see I have a long hard fight , ALI FRAZIER , but as both of those Pugilists, I wont back off either, and you must addopt the same mindset if you want to master parky, it is merciless in its savagery, so you must be equally determined in your defence, may I wish you well sir I know you will win through.
