Hi guys, my second time on here. I started Madopar 3 weeks ago but a small dose titrating up and so no impact as yet. I also have a DaT scan booked for early December.
However I had an appointment with my neurologist yesterday and he now thinks I have FND. I have looked into this and the symptoms are very similar to parkinsons. I have also heard that a DaT scan doesn’t always show anything for people with parkinsons so i am feeling even more confused and the black hole of uncertainty has just got deeper…
I am currently signed off work till early January as I am struggling to function with all my symptoms.
Anyone else had a confusion over diagnosis?
Good afternoon Clay … Don’t be confused. You have a DATscan booked for 4 weeks time. After this you will know if you have one of the many forms of Parkinson’s.
Take one step at a time. There is no point in worrying. Worrying makes things worse.
FND cannot be treated so it is not as if you are missing out on early treatment. I think they suggest physiotherapy / mild exercise which you could start now if you wanted to. Also take this as a nudge to get yourself eating more healthily & being as fit as you can be. I had a positive DATscan about 6 months ago & my Neurologist thinks / has guessed that I have Atypical Parkinson’s. This diagnosis cannot be proved. I was on Madopar & Ropinirole. I tried both & neither did anything for me. Both have been stopped & I am on no Parkinson’s medication.
Do let us know the results of your DATscan.
Best of luck.
Steve
Hello all…
Any thoughts? My DAT scan came back as nomal and so my neurologist says I don’t have parkinsons but FND. I am very confused as parkinsons medication is helping with my symptoms, i feel almost normal again…
Hello Clay … Good news that you don’t have Parkinson’s. I have no idea why the medication is helping you, placebo effect maybe?. Be grateful it does help.
You might get a second opinion on the Datscan?
Best of luck.
Steve2
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why do you say FND can’t be treated? if you said there are no reliable treatments for FND that work for everyone, i would believe that, but i find it hard to believe that absolutely zero cases of FND can be treated.
best wishes,
joe
Sorry parkieJoe … you are of course correct.
Happy Xmas
Steve2
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@Clay A DatScan can confirm PD but having a normal DatScan does not necessarily mean that you do not have PD. My first DatScan, about 12 years ago, was reported as negative!!
Thank you Douglas.
Yes I am awaiting a second opinion, due to see a movement specialist in May.
I have researched FND and people seem to have good/bad days and ‘triggers’ for thier symptoms. My symptoms remain the same day to day…
Will have to wait and see.
Clay