Has anyone experienced gradually bending forward while standing? I have noticed this for quite a number of years, especially when I am standing at a worktop preparing lunch or dinner.
I suddenly realise that I have bent right over towards the worktop. When I straighten up again, within about 30 seconds I am leaning forward as before.
I also have a separate sensation when sitting on my bed, where I feel as though I am falling backwards and to the left. It is never to the right; it is always to the left.
I am posting this today because I went to physiotherapy about some back problems and explained these symptoms to the physiotherapist. They said it did not seem to be a musculoskeletal issue they could resolve and suggested it may be connected to my Parkinson’s.
I would be grateful for any help or advice, especially from anyone with Parkinson’s who has experienced similar posture or balance problems.
Hi @LIVERpool1956, thank you for your post. We really hope you get some good advice from the community.
It’s common for people with Parkinson’s to experience changes in their posture. We have lots of information on our website on this which includes tips to manage it: Posture and Parkinson’s | Parkinson's UK
We also have a free, confidential helpline you can call on 0808 800 0303 where our advisers can answer your questions and signpost you to other support that may help you.
We hope this is useful. Please do let us know if there is anything we can do.
I have never experienced something like that, however the moderators obviously do know about it, and have offered great advise.
I hope it sorts itself out soon.
What you’re describing with the forward bend is really common in Parkinson’s—it’s often called camptocormia (or “bent spine syndrome”), and it usually gets worse when standing still in one place. The backward/leftward tilt while sitting is also a typical PD balance issue. Your physio was spot on to flag it as neurological rather than standard back pain.
A few quick steps:
Talk to your Neurologist/MDS: Bring this up at your next visit. Sometimes adjusting the timing or dosage of your Parkinson’s meds (like levodopa) helps, especially if posture dips when meds wear off.
Get a Specialist Neuro-Physio: Ask for a referral to a physical therapist trained specifically in Parkinson’s (like LSVT BIG certified). Standard PT doesn’t usually work well for PD-related posture.
Kitchen Workarounds: Sit on a tall perch stool at the counter, or rest your hips firmly against the edge while prepping food to reduce muscle strain.
