My post doesn’t seem to get a reply. I haven’t had a message to say it’s been authorised and the icon is more faded than other people’s. Am I doing something wrong?
How do I post something
Hi @Gill-abd and welcome to our friendly forum.
I’m happy to help you get going. I’d start with an introduction by going to Introductions and personal stories - Parkinson's UK Forum. Choose New Topic and jump right in to tell us all about yourself.
Don’t hesitate to ask us questions. The group members and all the moderators are always happy to help.
Janice
Forum Moderation Team
No matter what category I look at I don’t seem to have the ability to start new threads.
Is there a reason for this? Because currently if I want to initiate a conversation about something I feel a desire to comment on - eg the fact that Parkinsons does not qualify for free prescriptions - I have to search for an existing thread to respond to and this can result in me having to revive dead threads. When and where do I get the ability to initiate new topics?
The Forum is awful to navigate. Much prefer Alzheimers Society Dementia Support Forum. I will now log out
Ziggy, I agree …no idea how to use this forum.
Max
Hi
I’m Pat and don’t know what to do
I’m a 77 year old lady who was diagnosed with freeze of gate over 2 years ago. I’ve had no help or support since the prescription made me worse.
I prefer natural medicine anyway.
Has anybody had the neurotransmitter tests done by a firm Regenerus which in my case showed my dopamine to be normal but other levels up and down.
Has anybody heard of Macudopa.
I need help with the extreme tiredness I have which makes walking impossible now. [quote=“forum.manager, post:1, topic:11079, full:true”]
Ask your questions here about using the new forum
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Hi Pat, we’re really sorry to hear that you’re struggling. We hope that others on this forum might be able to offer their experiences and advice, but we wanted to let you know that you’re not alone.
We have lots of information about complementary therapies on our website here: Complementary therapies | Parkinson's UK
Although there’s little scientific evidence that complementary therapies can slow, stop or reverse the development of Parkinson’s, we have heard from many people with the condition who have had positive experiences of complementary therapies. The information on our website covers the treatments that people with Parkinson’s and their carers have told us they find most helpful. However, we would always recommend speaking with your GP, specialist or Parkinson’s nurse to find the best treatment for you.
Experiencing fatigue can be common if you’re living with Parkinson’s. If your feelings of fatigue are related to other Parkinson’s symptoms, such as tremor, stiffness or involuntary movements, they may be helped with Parkinson’s medication. This will also help you manage your symptoms better, so you have more energy to do things that may otherwise be difficult. However, remember that fatigue in Parkinson’s may not be related simply to these symptoms, so it’s important to speak to your GP, specialist or Parkinson’s nurse as well.
Of course, if you need us, we’re always here for you. Our helpline is free and confidential and our trained advisers can offer guidance and support, or refer you to a Parkinson’s nurse: 0808 800 0303.
We hope this helps and that you’re able to access the support you deserve.
The Parkinson’s UK Moderation Team